The Survivor Newsletter: Winter 2002
A few words from the Editor ...
Dear Friends - Christmas is nearly upon us and here I am again, trying
to assemble our last newsletter of the year. As usual, it is very busy in Head
Office - the Christmas Cards which have been ordered from you all have been
posted out (many thanks for the great response). Anthony, our new Administrator,
has been getting to grips with the workload (see his article on page 3), and
we are planning our AGM for 2003 and also having discussions as to how we can
best celebrate our 10 year Anniversary! I hope you find this newsletter interesting.
We are privileged to have an article by Ms. Dorothea Dowling, Chairperson MIAB
on important information for people with disabilities contained in the report
from the Motor Insurance Advisory Board (see page 4), and there is also an
interesting article on Information about the Late Effects of Polio (see page
5). News round up on pages 7 and 8 brings up-to-date news from around the regions,
about the Survey, and hints and tips for making life easier for us all! So, put your feet up and have a good read, and if you have any comments,
suggestions or articles, please let me know, and I will be delighted to include
them in the next newsletter. Hugh Hamilton, our Fund-Raising Chairman has asked
me to remind you that there are only 6 months left to the Women’s Mini Marathon
at the June Bank Holiday week-end 2003. Now is the time to ask your friends
and colleagues to run or walk for the Post Polio Support Group—before anyone else asks them!
Thank you again for buying the Christmas Cards, this was a good fund-raising
effort.
Have a lovely Christmas from Paula - Editor
Chairperson’s update ...
Another year has almost passed and our Group's work continues. Anthony
Carrick has now taken over as full time Administrator at Head Office. We welcome
him and look forward to supporting him in advancing the work of our Group throughout
the country. Victor is still with us and will be assisting Anthony. Aisling
has now left after a short overlap. We are grateful for her work on our behalf
and we wish her well in the future.
Our survey project is proceeding satisfactorily. Over 100 clients have
been completed and hopefully, the remaining clients will be surveyed before
Christmas. There is then the detailed work of data input, analyses and reports.
Our aim is to have this project completed by our AGM next year. The funding
of this project is of major importance to our Group and any assistance
members can give to Hugh in this regard would be appreciated.
Our new information booklet on the "Late
Effects of Polio" for General Practitioners, and others in the medical profession is being circulated
to all the medical libraries throughout the country. Our thanks are due to
the Queensland Health Authority for their permission to reprint and distribute
this excellent publication in Ireland.
We are pleased to welcome Phillo Mullaney and Anne Burns to the Board
of our Group. Phillo is the daughter of Joan Carr, a physiotherapist and Polio
survivor member, whom many of our members will know. Phillo and Anne have been
working supporting Hugh on our fundraising committee for some time and we look
forward to their contribution to the Board. - Jim.
News from the Office ...
Hello Friends,
I thought it was about time to introduce myself and let you know a bit
about myself, as I’ve been in the Administrator job for over a month now.
My name is Anthony Carrick and I was born and bred in Dublin. However,
I left in 1986 to work in England, initially in a small place called Denham
on the west of London and then in 1990 I moved to Oxford to work for Oxford
University Press (OUP).
My job with OUP was working as a Project Manager and then, later, as a
Project Director, managing projects of all sizes and complexities, usually
computer systems-related but not always.
This work took me to many different countries. For example, I lived for
a year in Mexico City, about six months in each of Buenos Aires, Istanbul,
Madrid and Cary, North Carolina, with shorter stays in India, Chile, Colombia
and New York. I think that’s the lot! In between times I was based in Oxford,
which is a very beautiful city and well worth a visit.
As examples of the different types of projects, I built a warehouse in
Mexico City, (even though I was supposed to be installing computer systems
only) and moved about 4,000,000 books, counting them all, not one by one, though
it felt like that.
In Istanbul and Buenos Aires, I was helping set up new OUP companies and
was dealing with local suppliers to install systems and software.
I came back to Ireland in May 2002 because it was time to do so. I’d been
away for 16 years, moving around a lot and enough was enough. And, anyway,
Ireland was in the World Cup and there was always a chance I could get called
up into the squad, even though I’m only 47 (though my knees are about 80)!
I started with the Post Polio Support Group in mid-October, had a couple of weeks of handover
with Aisling and now it’s just me, ably assisted by Victor Purcell, our CE
funded Office Assistant.
At the moment my desk is covered in a sea of paper, as I try to get to
grips with the day-to-day processes as well as the ongoing stuff, like dealing
with the Health Boards and other funding agencies.
However, I think I’m slowly getting to grips with it all. There are quite
a few things I want to do a bit differently but, for the moment, I’m writing
down my ideas, rather than making sweeping changes!
As the organisation expands the office needs to work as efficiently as
possible. However, I hope that our members can contribute also to enable the
organisation to provide a professional service to our members. To that end,
I would welcome any and all offers of help, whatever your skills and I know
that they are many and varied. One of the thoughts I had for the future was
to create a directory of members’ skills that you would be prepared to offer
but, in the meantime, I’m open to offers.
Please don’t forget that the office exists to help you all and you are
always welcome to phone or to call in
Anthony
We hope to have a photo of Anthony for the next newsletter, so you will
recognise him at the AGM! - Editor.
Fund-Raising News ...
Christmas Cards:
Our Christmas Cards have been selling very well, and many thanks to all
who have bought them. Thanks also to those who did Trojan work in selling the
cards at several shopping centres over the past couple of weeks. There are
still some cards left, so if you are one of those who have left it to the last
minute, just contact Victor at the office and he will send them out to you.
Could I also remind members who have sold cards, to please send the money to
Head office as soon as possible. Thank you.
Women’s mini Marathon - June 2003
This is a first reminder about the Women’s Mini Marathon, which takes
place on the June Bank Holiday week-end. Remember 2002 was our first effort
at the Women’s Mini marathon, and we had 40 participants (running, walking
and in wheelchairs) who have already raised an average of 200 euro each. We
are asking our members - please please … all who participated this year, do
so again for the Post Polio Support Group next year. And - most important - please ask your friends
to do the same and spread the news as far as possible - do it early, before
they agree to participate for someone else. We would like to double our participation
next year and with your help, I am sure we will.
Hugh Hamilton - Fund Raising Chairman
Thought for the Day:
“Taking a new step, uttering a new word, is what people fear most”
Fyodor Dostoyevski
Important information for people with disabilities contained
in the Report from the Motor Insurance Advisory Board
Of the 67 Recommendations in the 750 page report from the Motor Insurance
Advisory Board, published on 17th April 2002, there are several of general
interest to readers of this newsletter. Of specific relevance, however, is
the content of Recommendation 11, which reads:
That insurers undertake to desist from applying policy terms, limitations
or loadings that may be encountered by policyholders with disability issues
relating to drivers or passengers unless there is evidence of additional risk.
Unlike many of the recommendations which require further time for legislative
or structural changes to the insurance system, this recommendation has actually
been introduced with effect from 1st august 2002.
So how did this recommendation come about and what does
it mean for those managing disabilities?
Public submissions to the MIAB reported the experience that the mere mention
of a disability seemed to result in a loading on the premium or a restriction
of cover or both. This was considered particularly harsh, given all the other
challenges faced by such policyholders. Essentially, implementation of the
recommendation means that a quotation for motor insurance should be based on
the usual criteria—such as age, gender, driving history and vehicle details—but the declaration of a disability should only be assessed as an additional
risk if, in fact, such a risk exists.
It must, however, be stressed that this does not relieve the policyholder
of the responsibility to make full disclosure of any facts which may be relevant
to the underwriter. This long standing law can have serious consequences for
policyholders because, while non-disclosure may secure a short term premium
saving, the person may find themselves without valid insurance in the event
of an accident or claim. The MIAB highlighted what they regarded as a possible
imbalance in the operation of that existing law and have called for action
by the new Irish Financial Services Regulatory Authority (IFSRA) as detailed
in this extract from Recommendation number 23:
That IFSRA set rules for insurers to implement in concrete terms the
duty of utmost good faith as it applies to insurers, as a corollary to the
consumer’s duty of utmost good faith, to redress the imbalance in bargaining
power between insured and insurer …
So what do you do if Recommendation 11 applies to you?
As in all such situations, the first task is to prove your case.
- Ask your motor insurer what, if any, loadings or restrictions apply
to your insurance cover.
- If you are being penalised, ask for justification.
- If you are not satisfied that the terms imposed are reasonable,
ask for the standard terms and charges to be applied to you.
- If this is refused, then the matter should be reported to the Irish
Insurance Federation, 39 Molesworth Street, Dublin 2. Tel: 01 676 1820.
The MIAB will be reviewing the implementation by insurers of the recommendations
addressed to companies and will seek more stringent measures if there is evidence
of non-compliance. It should also be mentioned that the Equal Status act 2000
applies to insurance as well as other goods and services. The Equality Authority
investigates complaints under that legislation and they are based at Clonmel
St, Dublin 2. Tel: 01 417 3333 or 1890 245 545.
Dorothea Dowling—Chairperson MIAB
(With thanks to Frank Prenton Jones who obtained this
article from Ms. Dowling for the newsletter)
Have you seen our Posters in your lo-cal Health Centre
...?
During the past year, we have distributed our new Poster throughout
Ireland. Both the design and distri-bution of the Poster entailed a great
deal of work and expense on our behalf. The Poster should now be dis-played
in the Out Patient and Physio Departments of all General Hospitals, all main
Health Centres, all main Public Libraries, all Citizens Information Centres,
and all GPs and Physios should have received a copy through their newsletters.
Should you be visiting any of the above locations and you don’t see our poster
dis-played, ask: If they received it? - Why is it not dis-played? Let our
office know the location and we will send them out another poster. Thanks. Jim
Information on the Late Effects of Polio:
Reprinted with kind permission of GINI (Gazette International
Networking Institute) USA.
For Polio Survivors
Do you know that there are 12-20 million other individuals who had polio
living in the world? Although some people think “polio does not exist anymore,”
even today the poliovirus is causing poliomyelitis in under-vaccinated children.
You may live in a country that is still trying to eradicate the poliovirus
and where there are barriers to education, employment, and healthcare for survivors.
Or, you may live where cases of acute polio no longer occur, but where you
have to challenge the status quo that excludes people with disabilities from
full participation in life. In either case, for you, polio still exists.
There are long-term physical consequences to having had poliomyelitis.
New symptoms recognized by the medical community that may relate to prior polio
include unaccustomed fatigue – either rapid muscle tiring or feeling of total
body exhaustion; new weakness in muscles, both those originally affected and
those seemingly unaffected; pain in muscles and/or joints; sleeping problems;
breathing or swallowing problems; and/or decreased ability to tolerate cold
temperatures.
Any combination of the symptoms may affect your ability to conduct customary
daily activities such as climbing stairs, walking, lifting, etc.
Recommended Actions
Obtain a complete general medical evaluation from your primary care physician.
Any medical problems found in the evaluation should be treated and monitored.
If your symptoms persist, seek a neuromuscular examination from a specialist
in post-polio problems, typically a physical medicine and rehabilitation specialist
(physiatrist) or a neurologist. The purpose of this examination is to determine
what the problem is and to establish a baseline from which to judge future
changes, to evaluate and update your mobility aids and/or your ventilatory
equipment, and to develop an individualized management plan.
Do not attempt to diagnose yourself. Post-polio syndrome is a diagnosis
of exclusion and it is important to rule out (or treat) conditions with similar
symptoms that may be causing distress.
Although research has not yet identified a medication that stops or delays
the weakening of muscles, the symptoms can be managed. Seek medical advice
and use recommended mobility aids and ventilatory equipment. Listen to your
body and follow common sense guidelines that include avoiding activities that
cause pain and/or fatigue that lasts more than ten minutes. Pace yourself in
your daily activities, routinely stopping to rest for 15 to 30 minutes several
times a day.
Consider joining a support group that espouses self-help and encourages
group participation and positive action, or consider seeking individual and/or
family counseling to assist in making needed lifestyle changes.
Maintaining health is essential for those with a compromised neuromuscular
system. Heed general advice about eating well, getting the proper amount of
sleep, avoiding unhealthy habits such as smoking and overeating, and exercising
appropriately. Many symptoms result from the overuse and misuse of muscles
and joints. Carefully consider which muscles to exercise and how often.
Educate yourself and your loved ones about post-polio problems and treatment
approaches. Cultivate a team of traditional and, when appropriate, complementary
health professionals, collaborating with them as you strive for health and
independence.
For Families and Friends
The experience of having had poliomyelitis (infantile paralysis) is a
very personal one. Having the acute illness can result in no hospitalization
to isolation and months, even years, of rehabilitation. Memories of polio vary
as well. Survivors who had polio as children may have no conscious memory of
the illness or subsequent rehabilitation, whereas some survivors vividly remember
the pain and paralysis of the acute infection and their medical treatments.
The care differs from country to country, from decade to decade, and from rural
communities to cities.
Poliomyelitis is caused by any of three serotypes of poliovirus. The major
illness types include nonparalytic and paralytic poliomyelitis. The poliovirus
damages motor nerve cells and, consequently, the muscles instructed by those
nerves are temporarily or permanently paralyzed. Acute polio does not infect
sensory nerves, so sensation is not affected. Paralytic poliomyelitis can be
classified as spinal, bulbar, or spino-bulbar. Bulbar is the most serious form
of polio and involves the part of the brain dealing with the vital functions
of respiration and swallowing.
The new problems facing your loved one are not caused primarily by the
poliovirus, but are problems secondary to having polio. Polio Survivors experiencing
new symptoms have not been reinfected nor are they contagious. They need your
understanding and support.
International Polio Network recommends that all Polio Survivors have yearly
medical examinations and that those who are experiencing any of the persistent
new symptoms of weakness, pain, fatigue, and breathing problems obtain a comprehensive
neuromuscular examination. Some survivors are reluctant to seek medical attention.
Reasons for avoiding a physician can include early memories of polio, a recent
visit that was not helpful, belief that no physician today understands the
late effects of polio, or an inaccessible office or examination table. Your
role as a family member may be to encourage an evaluation and to assist in
implementing the treatment plan.
Polio Survivors do not experience new problems in isolation. What affects
them can affect you. You will be addressing, possibly for the first time, many
issues – selecting specialized health professionals and new equipment; learning
about access and disability laws; making choices in how to spend time, energy,
and financial resources. Additionally, long-standing roles may by necessity
be challenged or changed.
Understanding and accepting all of the ramifications of the late effects
of polio is not easy. No one can predict the future, but it is recommended
that you and the polio survivor in your life attempt to approach the concerns
as a team that includes health professionals.
Polio Survivors can have feelings of guilt about being “a burden.” Or,
they may feel sadness for “the way things were.” You may feel resentful of
your new responsibilities. It is recommended that you address these issues
as they arise. Everyone has different skills, methods, and preferences in solving
problems. Ascertaining and utilizing these skills can be very beneficial to
maintaining a healthy relationship. Many relationships have benefited from
an association with a support or self-help group or from family counseling.
Educating yourself about the many facets of the late effects of polio is the
first step in determining your role in a management plan grounded in the commitment
of your loved one to make lifestyle changes.
For Health Professionals
Survivors of polio may seek your medical advice for new weakness, overwhelming
fatigue, and/or pain. Some patients may describe these symptoms and “forget”
to tell you they had polio. This triad of symptoms is typically presented at
least fifteen years after the acute case of poliomyelitis, as the North American,
Western European, and Australasian experience documents. Individuals, now in
their seventh or eighth decade, are facing a combination of new polio problems
and aging. Because poliomyelitis has not yet been eradicated from the world,
survivors will be seeking assistance for years to come.
As early as 1875, Raymond and Charcot described a polio patient who reported
new weakness and atrophy in his right arm – the arm he used excessively due
to residual weakness in his left arm. As survivors from the 1950s epidemics
sought medical assistance for “tiring more easily,” researchers explored these
new complaints and, over the years, have developed the following criteria for
post-polio syndrome:*
Prior paralytic poliomyelitis with evidence of motor neuron loss,
as confirmed by history of acute paralytic illness, signs of residual weakness
and atrophy of muscles on neurologic examination, and signs of denervation
on electromyography (EMG).
A period of partial or complete functional recovery after acute paralytic
poliomyelitis, followed by an interval (usually 15 years or more) of stable
neurologic function.
Gradual or sudden onset of progressive and persistent new muscle
weakness or abnormal muscle fatiguability (decreased endurance), with or
without generalized fatigue, muscle atrophy, or muscle and joint pain. (Sudden
onset may follow a period of inactivity, or trauma or surgery.) Less commonly,
symptoms attributed to post-polio syndrome include new problems with breathing
or swallowing.
Symptoms persist for at least a year.
Exclusion of other neurologic, medical, and orthopedic problems as
causes of the symptoms.
It is important to note that there are consequences to having had polio
that may not fit the criteria. Polio Survivors who visit your office may be
reporting a variety of neurologic, orthopedic, medical, musculoskeletal, emotional,
and rehabilitation complaints, all of which need to be methodically addressed
and not dismissed simply as signs of aging.
International Polio Network recommends that all Polio Survivors receive
consistent, basic medical evaluations. If a patient’s symptoms are not explained
and alleviated by general medical approaches and the symptoms persist or worsen,
a referral is in order. A physiatrist or neurologist can conduct a neuromuscular
evaluation to establish a diagnosis and to recommend a management plan that
will be sent to you and your patient.
GENERAL READING
Jubelt, B., & Agre, J.C. (2000). Characteristics
and management of postpolio syndrome. Journal of the American Medical Association,
284, 412-414.
Maynard, F.M., & Headley, J.H. (Eds.)
(1999). Handbook on the Late Effects of Poliomyelitis for Physicians and
Survivors. Saint Louis, MO: Gazette International Networking Institute. (www.post-polio.org/ipn/hndbk99.html)
*March of Dimes Birth Defects Foundation. (1999). Identifying
Best Practices in Diagnosis & Care. Warm Springs, GA: March of Dimes International Conference on Post-Polio
Syndrome. (www.modimes.org)
News Roundup ...
Western and North Western Region:
Members in Galway, Mayo, Roscommon, Sligo, Leitrim and Donegal will have
by now, received a letter asking them to complete and return a form to Head
Office if they would be interested in attending a Stress Management Week-end,
which will be held in Cuisle, Dunamon, Co Roscommon, on 11/12/13 April 2003.
This week-end will be held along the same lines as the week-end held in
Cork in September, with talks from an Occupational Therapist and Physiotherapist,
as well as Stress Management Techniques from Psychotherapist Breda Fadden from
Galway. Of course the week-end will include time for chat and sharing ideas
and tips, and we hope that members in these areas will come and enjoy a week-end
of relaxation and information. Unfortunately, places are limited to the first
30 members who apply. Spouses/partners/carers are also welcome. The cost of
the week-end is €65 per person, including full board and all activities. This
week-end has been part-funded by the NWHB, the WHB, and the Post Polio Support Group.
Extract from The Irish Emigrant, 18 Nov.2002:
A taxi-driver was fined €250 when he was convicted of refusing to take
a wheelchair passenger in his cab. Do any of our members have difficulties
when getting a taxi? Please let us know, and we will publish in the next newsletter
- Editor.
Northern Ireland Polio Fellowship:
The NIPF is organising a conference on March 11th 2003. Speakers will
include Dr. Orla Hardiman of Beaumont hospital, and Dr. Whitely from the UK.
They are also hoping that Dr. Richard Bruno (Author of The Polio Paradox) will
be able to attend. More information on this in the next newsletter.
Thanks for the request!
Joan our Secretary, wishes to thank the person from Crumlin who had a
request played for her recently on local radio.
Clarification of Research Phone Call:
Thank you to all who agreed to take part in a phone call research (form
with last newsletter). We wish to clarify that agreeing to take part in this
phone call research, does not involve you in any other part of the research.
New Disability Website up and running:
This site, www.disability.ie, is an on-line information service primarily
for people with disabilities, but also relevant to various groups and individuals
with an interest in disability. For further information contact Cathriona Tumelty
- Disability Information Ireland at 01 601 6344.
Survey Update:
By now, most of you who have agreed to take part in our Survey, will
have had a visit from an Occupational Therapist. Most members have found this
a very positive experience, with the OT being very helpful and interested.
The questions are indeed detailed and the information gathered will give us
a concrete knowledge of our members’ needs over the next few years, so that
we can speak from a position of knowledge when it comes to lobbying the Minister
for health on behalf of our members. We hope to have a report on the Survey
ready by our 2003 AGM
Christmas Shopping with ease!
Recently, I went shopping at Liffey Valley Shopping Centre, and was absolutely
delighted with the service provided for people with disabilities from Shopmobility.
There was a whole bank of disabled parking bays (just follow the signs), and
the helpful assistant in the Shopmobility Centre gave me forms to fill out
(he said that this was only a once-off thing - and he gave me a membership
card for use the next time). Then, with some basic instruction, off I went
in a nifty little electric buggy, and did my shopping in comfort. I would recommend
it for your Christmas shopping - definitely.—Editor
By the way - a reminder to all members of the Disabled Drivers Association;
don’t forget to send back your tickets for the Christmas Draw which will take
place on December 22nd with lots of great prizes!
A Handy Gadget:
There is a great gadget for anyone who has difficulty in using a pepper
or salt mill—you know the scene, where you have to hold the pepper mill with
one hand and twist it with the other, while at the same time making sure it
is held over the food being seasoned! This gadget is a one-handed mill, with
both salt and pepper in the one container. This can be obtained by mail order
over the internet from www.lakeland.com
Our Website:
Just a reminder to look at our website at www;ppsg.ie from time to time
- to keep you up to date with Post Polio Support Group latest news. There is also a page on the
site with lots of interesting links to other Polio Organisations worldwide.
Letters to the Editor ...
Dear Paula
Three years ago we had our first get-together at St. Dominic’s Centre,
Cork, which turned out to be an invaluable
experience. Everyone enjoyed it so much it was decided to make it an annual
event. A happy group of members taking a break at the Cork Stress Management
week-end.
With Maureen at the helm, she was busy preparing an interesting agenda
to have a wide variety of items for everyone, i.e. relaxation, aids & appliances, aromatherapy, reflexology, plus updating any information available.
On arrival everyone is greeted with a cheerful welcome. Our venue, St.
Dominic’s, is ideal, being convenient for all transport. One could only describe
St. Dominic’s as a bit of “Heaven on Earth.” The building is full of character,
beautifully situated overlooking the River Lee, and adapted to meet everyone’s
needs.
The peace and tranquillity experienced in many a stroll around the exotic
gardens would be difficult to put into words, not forgetting all the tips from
the wonderful gardener. The staff is excellent, cheerful and ready to assist
whenever needed.
We have renewed old friendships and made a lot of new friends and we look
forward to meeting each year, where we never seem to have a dull moment. Most
importantly, we share a common bond in being Polio Survivors.
I’m certain there are many similar venues throughout the country where
members could enjoy meeting annually and share their views and experiences.
In addition to meeting at our AGM the awareness weekend gives us quality time
together.
Happy Christmas and a great New Year to all Post Polio Support Group and
members.
Peggy Brennan
When is a duck a goose …?
From all accounts, there has been much controversy in connection with
our Christmas Card, with the pictured of a “feathered friend” on it! Someone
called it a Duck when designing the Christmas Card Order Form, but of course
it was a Christmas Goose. With apologies to the Artist, who has taken it all
in good humour! Joan says that she will arrange for an agricultural advisor
to come and give us a lecture on “When is a Duck not a Duck?” We know the answer
now. “When it is a Goose, of course!” Anyway, the good news is that with all
the talk about it, the infamous Goose has been a firm favourite on the Christmas
Card list. - Editor
Ted’s Electric Legs
Legs that ever did so much,
giving pleasure with a touch
of gaiety, as circus clown.
Now resigned to staying still.
Unable anymore to thrill
childish hearts or worried minds.
Polio, and cancer now
served to make them stop and bow
to the stark reality.
Through the morphia it came,
a vision sweet, an active dream.
He had electric legs, he said.
Walked, he said, and even climbed.
Better legs one could not find
to carried one up and away.
Electric legs, the stuff of faith,
to carry through the vale of death
to God, who died to set them free.
May they walk and climb all day
in the land of no decay
where no pain or weakness dwells.
Joan Bradley
We have learned with sadness of the death of three of our members—Declan
Brosnan, Ted Greening and Ann Beckett, and extend our sympathy to all who knew
them. Joan Bradley
DISCLAIMER:
Whilst every care is taken to ensure accuracy, the Editor and the
Board can accept no liability. The views expressed in this newsletter are
not necessarily their views.
ADMINISTRATOR – Anthony
Carrick
OFFICE ASSISTANT –
Victor Purcell
HEAD OFFICE
Tel/Fax 01 873 0338
E-mail: info@ppsg.ie
Website: http://www.ppsg.ie
BOARD MEMBERS
Jim Costello: (Chairperson)
Tel/Fax: 01 668 6986 (H)
Tel/Fax: 01 620 6154 (Hosp)
Email: jjcos@indigo.ie
Joan Bradley: (Secretary)
Tel/Fax: 01 454 9237
Mobile: 087 7637598
Email: secretary@ppsg.ie
Mary McEvoy: (Treasurer)
Tel/Fax: 0502 27204
Mobile: 087 240 1591
Email: treasurer@ppsg.ie
Paula Lahiff: (Newsletter Editor)
Tel/Fax: 071 64791
Mobile: 086 322 4402
Email: newsletter@ppsg.ie
Hugh Hamilton (Fund Raising Coordinator)
Tel: 01 289 4800 Fax: 01 289 2394
Mobile: 087 255 3012
Frank Jones
Tel: 01 820 0320
Mobile: 087 240 1591 or 087 9385537
Hugh Conlon
Tel: 091 751 750 (H)
Mobile: 086 803 6145
Email: hcon@eircom.net
Phillo Mullaney
Tel: 01 832 1629
Mobile: 087 907 4758
Anne Burns (ex oficio)
Tel: 01 453 4150
Email: anne.burns@agriculture.gov.ie
REGIONAL REPRESENTATIVES
Midland Health Board Region:
Patrick Fitzpatrick
Tel/Fax: 0505 46738
Email: paddyfitz@eircom.net
Mid Western Health Board Region:
Noreen Mullane:
TelFax: 061 302830
Southern Health Board Region:
Maureen O’Sullivan:
Tel: 021 4372 017
Fax: 021 4376 032
South Eastern Health Board Region:
Ann O’Kelly Guerin
Tel: 053 32633
Western Health Board Region:
Barbara McDonagh
Tel/Fax: 091 593 664
Email: babamcdonagh@eircom.net
North Western Health Board Region:
Paula Lahiff
Tel/Fax: 071 64791
Email: newsletter@ppsg.ie
North Eastern Health Board Region:
Jackie Minnock
Tel/Fax: : 042 937 7037
Email: jackiem@gofree.indigo.ie
South Western Area Health Board, & Northern
Area Health Board
Joan Bradley
Tel/Fax: 01 454 9237
Email: secretary@ppsg.ie
East Coast Area Health Board
Monica Cantwell
Tel: 01 497 1274
Membership of the Post Polio Support Group is only €10 per year.
If you would like more information about the group please contact Head Office
at the phone number above.
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