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The Survivor Newsletter: Spring 2011


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Photo of teddy bears attached to wheel chair. Caption reads 'Cheerful Teddy Bears - Limerick AGM'

DISCLAIMER: Whilst every care is taken to ensure accuracy, the Editor and the Board can accept no liability. The views expressed in this magazine are not necessarily their views or the views of the Group. The Group does not endorse any product or service that may be featured.

FROM THE EDITOR

Photo of Vincent McDonnellAny new undertaking can be daunting. But when such high standards for “The SURVIVOR” magazine have already been set by former editors, Paula and John, the daunting is all the more… well daunting. So it is not without some trepidation that I try to fill their shoes in my new role as editor, and I only take a size 4.

My wife Joan and I are well known in the Cork Group, but for all those others who haven’t met us, I suppose I’d best make some introductions. I was born in County Mayo in 1951 and headed for London in 1970 to seek fame and fortune. I got the opportunity to study electronics and worked there as an engineer for 14 years.

Joan was born in Limerick in 1951 and contracted polio in 1952. She spent quite a while in various hospitals and eventually walked with the aid of callipers. After numerous operations she was able to dispense with the callipers and at present is blessed to still be able to walk without aids.

In 1971 we became pen friends, met for 4 days in September 1972 and then again for 10 days that Christmas, when we got engaged. The next time we met in April 1973 it was to get married. Family and friends shook their heads, muttering it wouldn’t last, but I’m glad to say that 38 years later they’ve been proved wrong. After the wedding, it was back to London together where our son, Vincent, was born in 1981. In 1984 we gave up our careers in London and returned to live in Co. Mayo so I could write fulltime. Then in 1990 we moved to Cork.

We both were always interested in writing and in 1988 my first novel was published. Since then 12 further books have appeared and my latest, a history of Ireland, is due for publication this summer. Joan’s memoir, A Spring in my Step, a humorous account of growing up with polio, was published in 2004. Right now I’m a stay-at-home husband while Joan works in a busy medical practice. We love gardening and travelling, and believe that life is there to be lived, and there should be no time for regrets.

At present our country is in the grip of recession and there’s a terrible sense of doom and gloom about. It’s affecting everyone and there seems to be no hope at all. But all polio Survivors have been through a number of recessions and know, better than anyone, that there is always hope.

When Joan and I returned to Ireland in the depths of the recession in 1984, it was terribly difficult then too. But we Irish, just like polio Survivors, are a resilient lot, and we survived and eventually made a reasonably good life for ourselves. It wasn’t easy, and won’t be easy this time. But remember, you’re polio Survivors. You’ve proved yourself resilient and will do so again. I know, because I’ve lived with a Survivor for 38 years and I’ve never known anyone so determined as Joan. Her motto is: To achieve the impossible you just need a little more effort than usual. So with her to help me, perhaps I shouldn’t feel so daunted.

So I will do my best. But remember, “The SURVIVOR” is YOUR magazine. So send me your personal stories, your poems and your words of inspiration, and I’ll do my best to publish them. Don’t worry about things like spelling. I’ll let you into a secret – I’m not the best speller in the world.

I want to thank all those who sent me their best wishes – too many to mention here. A special word of thanks to John and Mary McFarlane for their kind hospitality and for all of John’s help and guidance. And thanks to Evelyn Wainwright also.

By the time you get to read this we’ll hopefully have a new government, the daffodils will be in bloom, spring in the air and all of us looking forward to meeting up at the AGM in Tullamore on 7 May. Until then, take care and may your God bless you and keep you safe.

Vincent McDonnell
Email: newsletter@ppsg.ie
Tel: 087 2849575

Thanks to Donal K. Boyle for permission to use the cover photograph, which has raised many a smile!

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FROM THE CHAIR

Photo of John McFarlane After these few years I find it somewhat strange, but somewhat comforting, to be back in the position of a contributor to “The SURVIVOR” as opposed to worrying about where the copy will come from. I am sure that all will join me in welcoming Vincent McDonnell as the new editor, but as with all things he comes as part of a package with his wife Joan. Joan volunteered to help with the magazine and proof read, so now I am going to be shown up by real professionals. Joking apart, I know that Vincent will welcome input from all over the country, not just on matters post polio, but on all aspects of life that affect us. Remember, it’s your magazine and a small but not insignificant fact is that Vincent is the first non-Director to be the editor, so reinforcing our message of being a truly member-led group!

It is only a few short weeks now to when we all gather in Tullamore. Although a shorter event than in recent years to reflect tighter economic times, it will still act as a focal point of the Group’s social calendar. The full programme will be a distillation of all the best offered by the Group over the past few years, cultural, informative and above all fun. So come prepared, and as you will see from a letter to the Editor later in this edition, show that this group really rocks!

 

Have your contact details changed recently?

Do you have an urgent need for aids, appliances or services?
Have you got a new email address?
If so, please contact Lillian at the office and let her know.

Tel: 01 8898920

 

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2011 NOMINATIONS TO THE BOARD

The time for the Group’s Conference & AGM is fast approaching. The last 6 months have been extremely busy, the core work being the launch and implementation of NEW HORIZONS – Plan2015. At its centre is the idea that the Group should be driven by the experiences and needs of its members, their families and carers. Their voice at local, regional and national level is crucial to the Group’s long term success and viability in supporting polio Survivors.

Many of the Group’s Directors have had a long and distinguished history in championing the cause, and long may they continue to do so if they wish. Others, like myself, have served for a shorter time, but all have given their time selflessly. However, we need new blood, fresh perspective if the Group is going to progress to the next stage of its development and support for Survivors and all those who care for them.

Now is the time to think about how YOU can make a difference, and as it says in the enclosed nomination form - join a strong dynamic team to help the Group. Polio Survivors, members of their families and carers may be nominated for election to a seat on the Board. Being a Director is not as daunting as it sounds and it gives you the chance to really make a difference and influence decisions.

The Board meets 6 times a year, usually in Dublin, and all the Directors are on one of the Group’s Committees. Most of the communication is by phone and email, and it’s not just about PPSG matters that we speak; sometimes we sound more like a mini social support group in the way that interactions work. Anyone who becomes a Director has their expenses paid, you are not left out of pocket, and will, if they want, be able to attend training sessions. Additionally, I am often asked are there any risks. All Directors, like every volunteer who collects at church gates etc., is insured against risks, both as a volunteer and for other matters that bind the Group as a legal entity.

We need more people involved, not only to spread the load, but also so the Group can fulfill its promise in being much more led by polio Survivors, families and carers at the grass roots. Think about it, ring me if you want, in confidence, to talk it over, and find out what is involved.

BUT ABOVE ALL PLEASE THINK ABOUT IT!
HELP US SUPPORT POLIO SURVIVORS,
THEIR FAMILIES AND CARERS

John R McFarlane
PPSG Chair of Board of Directors

21 February 2011
Tel: 057-9353552 or 087-2029830
Email: chairman@ppsg.ie

TULLAMORE IN THE SUN — WE HOPE!

Well it’s coming up to conference time again and we are planning this year’s AGM and Conference for Tullamore on the May 7. We will have a short programme for the Saturday, starting about midday and running to about 4.30 pm. We will have a banquet later in the evening. We are hoping for a great turnout.

Tullamore has good bus and rail links with the rest of the country, and good road connections. Our friends in Civil Defence have promised to help with getting people to and from the station.

Come for an hour, or a day, or for the whole weekend – you will enjoy the gathering. Please fill in the booking form in “The SURVIVOR” and return it in the free-post envelope.

On Sunday morning a Mass, themed for Polio Survivors, will be broadcast from the hotel to the rest of the country starting at 10.00 am on 252 long wave and on RTE Radio 1 Extra and on DAB digital radio and worldwide online at www.rte.ie/digitalradio RTE have advised us that, in addition to regular listeners who have clear denominational allegiance, they cater for members of the public who have little connection with any denomination and, perhaps, with a vague interest in Christian worship. It is important, then, that the service we broadcast is an inclusive one, and is open to all denominations, not alone in Ireland, but to Polio Survivors worldwide.

Eamonn Farrell

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CONQUIZ WINNERS AND ANSWERS

The Conquiz competition, magnificently organised by our Co. Clare member, Edwin Bailey, was drawn on 9th December 2010 and the winners were:—

1st Prize: Nora Hayes, 14, Oak Terrace, Lisduggan, Waterford.
2nd Prize: Gordon Adams, Cortober, Cootehill, Co. Cavan.
3rd Prize: Helen Kielty, 164, Tonlegee Road, Raheny, Dublin

Answers to Conquiz:

1) Focus ones attention (11)    Concentrate

2) Overcome the opposition (7)    Conquer

3) Musical performance (7) Concert

4) Worry (7)    Concern

5) To keep secret (7) Conceal

6) Defunct aircraft (8) Concorde

7) Bring to an end (8)  Conclude

8) Agree with (6) Concur

9) Declare unfit for use (7)  Condemn

10) Reduce (8) Condense

11) Lead (7)  Conduct

12) Protection in electrical installation (7) Conduit

13) Hostility (8) Conflict

14) Small pieces of coloured paper (8)  Confetti

15) Seasoning (9) Condiment

16) Evergreen (7) Conifer

17) South American vulture (6)Condor

18) Gathering of college of cardinals (12)  Congregation

19) Pleasant and agreeable (9) Congenial

20) Seize (10) Confiscate

Are you a Member, and do you have an E-Mail Address?

Is is registered with the PPSG?
If not, please drop us an E-mail to: fsw@ppsg.ie

Polio Survivors helping each other – PART 1

This document has been written to inform Polio Survivors who wish to learn more about the Post Polio Support Group:

The aim is to make the Post Polio Support Group more meaningful to each reader

The mission of the Post Polio Support Group

… to create awareness and to provide information regarding the late effects of polio among Polio Survivors, statutory agencies and the wider medical profession, and to ensure that the needs of Polio Survivors relating to their condition are met to enable them to live with dignity

Setting the Scene

The Post Polio Support Group was set up in 1993 by Polio Survivors to assist people who might be experiencing Post Polio Syndrome. They knew that the lack of information available to Polio Survivors and to doctors and others about polio and its late effects was a big problem

The Group works tirelessly to

The Post Polio Support Group is member led and Polio Survivors are central to its work

The central office for the Post Polio Support Group is at

Unit 319, Capel Building, Mary’s Abbey, Dublin 7
Telephone calls, especially from Polio Survivors,
to 01 8898920 are welcome
Charity Number CHY 11356

E-mails to the Chair are welcome at chairman@ppsg.ie

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POLIO

Post Polio Syndrome and Postpolio Myelitic Syndrome

For many Irish people there is little or no knowledge of polio or its effects. Even vaccination against polio is combined with other shots so many don’t know that the 6 in 1 for babies includes polio as one of the six vaccinations. Many doctors and other medical professionals qualifying today have not studied polio or its effects, short or long term.

It is great that this year (2010) the World Health Organisation has for the first time recognised Post Polio Syndrome. It now has an official medical title Postpolio Myelitic Syndrome. We hope this recognition will increase awareness, particularly in medical circles.

The Group has done its best to inform all concerned about Post Polio Syndrome. With the help of friends in the medical professions and the Health Service Executive (HSE) it produced Post Polio Syndrome-Management and Treatment in Primary Care. We all call it “The Blue Book” for convenience.

Any member of the group can request a copy of the Blue Book from the central office by phoning or writing. If you want your doctor or physio or anyone treating you to have it you only have to ask. We also supply it to any caring staff who contact us. They can choose to have the book or the same information on a CD.

If you have had polio, even many years ago and, in recent years, you are experiencing one or more of the following symptoms you may be living with Post Polio Syndrome;

Be strong At the moment there is no cure for what you are going through, though there are a lot of things you can do to maintain your lifestyle. You will need a lot of resolve from yourself and the Post Polio Support Group is here to help where it can. You will have to make changes in how you do things but the results will make it worthwhile.

Family and Friends Support Make sure that you and your family and friends understand the problems associated with the late effects of Polio and how you can work co-operatively to manage your changing lifestyle. It is important to find solutions to problems so that you continue to enjoy life and keep the independence you have fought so hard for.

Peer Support Other Polio Survivors can be of great assistance to someone coping with the late effects of Polio. They may share your symptoms and may know of treatments that can help you

Diagnosis Diagnosing Post Polio Syndrome is difficult and is best done by a consultant neurologist who has experience of the condition

Energy Management Strike the right balance between resting and being active.

General Health Give your body the best chance it can have by living healthily.

New Aids New lighter callipers and other aids may make your life easier for you.

Greater Care Always seek professional advice before taking prescription or over the counter medication or remedies.

Specialist Treatment From Physiotherapists, Occupational Therapists, Speech Therapists, Orthotists, Counsellors, Chiropodists, and others.

Specialist Consultations with Neurological, Orthopaedic, Rehabilitation, Pain and Respiratory Consultants, amongst others.

Psychological Support From Psychologists and professional Counsellors.

If you want any advice with any of the issues raised in this note please call Lillian at the Post Polio Support Group, Unit 319, Capel Building, Mary’s Abbey, Dublin 7 Telephone 01 8898920

We intend to publish subsequent parts in forthcoming editions of “The SURVIVOR” (Editor)

FUNDRAiSING NEWS

First of all, the Fundraising Committee would like to thank our members and friends for your great support in raising in 2010 over €90,000 for the PPSG, a significant amount of which was spent on heating grants before the year end, which selected members again very much appreciated with the second harsh 2010 winter spell we had.

Despite some further anticipated financial cutbacks from other sources, we must strive to continue to raise much needed funds to continue to assist in funding necessary projects for the benefit of members. As in previous years, much of our fundraising income comes from our participation in sponsored marathons around the country. Some marathon events we intend to be involved in this year up to the summer include: The Dublin Flora Women’s Mini-Marathon, The Bord Gais Energy Cork Marathon and The Western People West of Ireland Women’s Mini-Marathon.

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Flora Women’s Mini-Marathon

The 10k Flora Women’s Mini-Marathon takes place on Bank Holiday Monday, 6 June, at 3pm. Entry forms are appearing in the “Evening Herald” on Wednesdays and Saturdays throughout March, and to the 27 April closing date, or when the maximum number of entries is reached. As in previous years, a sponsorship card will be issued to members by post. Please also see The Flora Women’s Mini-Marathon flier printed in “The SURVIVOR”. We would be delighted if you could take part, or get family or friends to take part and raise sponsorship for the PPSG. If you can get a group to be involved, the PPSG can help to subsidise the costs involved, i.e., towards entry fee, transport/meals etc. For further information, you are welcome to contact the undersigned (Anne Burns, Tel. 01 4534150, or email: boyneabu@eircom.net)

Alternatively, you might wish to sponsor PPSG Director, Joan Bradley, who is participating once again this year. (See below recent interview I had with Joan on her decade of involvement in The Flora Women’s Mini-Marathon). Or a donation, no matter how small, sent to the office by postal order, or money order, or by cheque, would also be welcome.

Interview with Joan Bradley

Photo of Joan Bradley in sombrero at Dublin Marathon(Joan is a founder member of the PPSG and has been in contact with many polio Survivors over the years. She has also been involved with the annual Flora Women’s Mini-Marathon since the Group first took part. Members from all over Ireland have sponsored her faithfully, and the 2011 event will be her tenth consecutive year to take part).

Joan, where did the idea to take part originate?
The Post Polio Support Group got the idea to raise much needed finance.

How did you become involved in your first marathon?
Volunteers were required and I answered the call.

How do you prepare in advance for the event?
I get my wheelchair oiled and in good order.

How do you organise friends to take part with you?
For my first marathon, I had loaned a calliper to a Drama School in Dublin. I then asked them to push me in the marathon and they did. I wonder if any of them are now in Hollywood? From then on, some faithful friends push me each year.

What is your usual timetable on the day?
I do normal things like having my lunch before I take part.

Describe the atmosphere taking part?
This is usually upbeat most of the time.

Have you witnessed any unfortunate situation?
I saw a lady dressed in white fall in melted tar.

How has the weather played out on the day over the years?
The weather plays a big part. I have seen cold, murky and scorching weather over the years. On the whole it has not been bad.

What advice would you give to someone thinking of taking part for the first time?
Dress for the weather on the day. Use the toilet as near to the starting time as possible.

Have you an interesting or funny incident you recall?
One time a strange lady took over pushing without being asked. She announced that she had milked 50 cows before setting out that day. She pushed me as if a farm dog was nipping at her heels.

What has been the most memorable aspect of taking part?
Watching other walkers trying to cope with the event and reaching the end each year with my pushers still alive. It is satisfying to know that so much finance is raised by taking part.

All our members will join with me in thanking you for taking part in this interview and for, without fail, being involved in The Flora Women’s Mini-Marathon right through the past decade. And doesn’t Joan’s photo look terrific sporting her sombrero?

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The Bord Gais Energy Cork Marathon

The Bord Gais Energy Cork Marathon also takes place on Bank Holiday Monday, 6 June. Though this event goes the full 26 miles-plus distance, do not panic, as the organisers also allow participants to do a shorter run by completing the race as part of a relay team. Some of our Cork supporters over several years have enjoyed being part of such a relay team. You can contact Evelyn Wainwright, Tel. 021 4847313, or by email: evelyn99911@gmail.com if you know someone who might wish to complete the full distance, or as part of a relay team, or if you think you can raise sponsorship. The PPSG will also be at Carrigaline Shopping Centre on 25 March seeking sponsorship funds.

Western People West of Ireland Women’s Mini-Marathon

This is the first year of the PPSG’s involvement in the10k Western People West of Ireland Women’s Mini-Marathon from The Mall, Castlebar, to be held at 12 noon on May Bank Holiday Sunday, 1 May. You can contact Bridie McMahon, Tel. 094 9540285, or by email: sbmcmahon70@gmail.com if you, family or friends would like to take part, or support the marathon.

North Louth Raffle and Church Gate Collections

Easter Egg Raffle

Brendan Moore is selling Easter Egg raffle tickets, proceeds for the PPSG, at Boyd’s Shop, Dundalk, on Tuesday, 8 March, and at the Long Walk Shopping Centre, Dundalk on Saturday, 16 April. For further information, contact Brendan at, Tel. 083 4036434.

Church Gate Collections

Church Gate Collections for the PPSG will be held at Masses on the weekend of 28 and 29 May at Knockbridge, Kilkerley, Jenkinstown, Lordship and Ravensdale Churches. If you can help out for (Knockbridge or Kilkerley) contact Jackie Minnock at, Tel. 042 9377037 or by email: jackiem@gofree.indigo.ie or (for the other locations) Jim Murphy at, Tel. 042 9371266.

Punchestown: Co. Wicklow Race Day

Tom Carberry is organising a Race Day, proceeds for the PPSG, at Punchestown Race Course on Tuesday, 3 May, which is part of Race Festival Week. The cost, €100 per person, includes all-day admission to the reserved enclosure with your own reserved seat, excellent lunch and afternoon tea, tote facilities etc., and fully accessible facilities. If you are a fan of racing, or would like to have an enjoyable day out, why not give Punchestown a try? The PPSG will also need volunteers for bucket collections there that day. For further information, contact Tom at, Tel. 087 2335206

Kerry and Cork Collections

Tralee

Lots of volunteers are needed for bag-packing to raise funds for the PPSG in Dunnes Stores, Tralee, on Friday, 10 June (6pm-10pm) and Saturday, 11 June (10am-6pm). The store has twelve check-outs. If you, or family or friends can help, or if you have contacts in other local organisations whose members might be in a position to do bag-packing, please contact Dolly Lawlor on 066 7185475 or 0872043795 or Evelyn Wainwright.

Cork

A bucket collection will take place at Supervalu Shopping Centre, Ballincollig, Cork, on Friday, 22 July. Evelyn would welcome a call if you can assist in any way.

We hope to keep you informed of other fundraising events in future editions of “The SURVIVOR”. Watch this space relating to the Fundraising Irish Music Night, in the summer, in Toormakeady, Co Mayo.

New ideas for fundraising forwarded to a member of the Fundraising Committee, or to the office, are always welcome.
Anne Burns

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FUND RAISING – A Thought

If you are celebrating an anniversary or other special occasion people are often at a loss for what to buy you – after all most of us have reached an age where we have most if not all we need for the house and ourselves. So why not suggest to family and friends if they are stuck for that “special something” a donation to the PPSG would never go amiss. All will be acknowledged and will be a benefit to a polio Survivor somewhere. You never know it might even be you!

Anne INTERVIEWED
BY THE IRISH TIMES

On March 1, The Irish Times published an article by Joanne Hunt, titled: Why not reverse unkindest cut of all? This referred to the €8 cut in the disability allowance, which was introduced as part of the last government’s austerity measures. Those interviewed spoke out against the cutback, and outlined numerous reasons as to why it is so unfair to those who are most vulnerable in society.

One of those interviewed was Anne Pepper, a Polio Survivor and a member of the PPSG. Anne spoke most eloquently in outlining her reasons as to why the cut is so unfair. For example, Anne used to charge the batteries in her motorised wheelchair each night. But due to the cutback, she now only charges the batteries when it is essential that she go out.

Like many Survivors, Anne also suffers from the cold. Considering that the last two winters have brought record breaking low temperatures, it is obvious that the cutback has placed an extra burden on people like her.

Like all of those interviewed for the article, Anne hopes that the government will reverse the €8 cutback. She also hopes that the government will also improve the scheme which provides transport to hospital appointments. At present it can take numerous phone calls to access the service and even then in certain circumstances – for example if there is a delay at the hospital – the patient can find themselves having to make their own arrangements to get home, something that Anne herself has experienced in extremely inclement weather.

Anne hopes that politicians are being sincere when they promise to look after the most vulnerable in society. We all echo that hope. But only time will tell if the politicians are sincere in their promises to make life a little more tolerable for those with disabilities.

SOCIAL SUPPORT GROUP UPDATE

Many of the Social Support Groups’ 2010 Christmas Dinners, postponed due to the adverse weather, have been going ahead since January. It is noted that members are enjoying their outings in this normally “quieter” period as you will see from the West Region report.

Most Social Support Groups have, or are planning, to commence their 2011 meetings. Convenors, if you let me know your meeting and outing dates for the year we can include these details in future editions of “The SURVIVOR”. Details of interesting features from your meetings would also be welcomed.
Anne Burns

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SOCIAL SUPPORT GROUP
CONTACT DETAILS

Bray Group

Location: Bray
Area: South Dublin, North Wicklow
Contact: Maggie Gillespie and Nuala Harnett
Tel: 086-8582406
E-mail: Tonygarrow@eircom.net
Meetings: Meets at 8pm on the first Tuesday of every month from March through October or November.
If you live in this area and would like to attend these social meetings, please give Maggie a call.

Carlow Group

Location: Seven Oaks Hotel, Carlow, Co. Carlow
Area: Co. Carlow
Contact: Ann Shanahan
Tel: 086-8832892
Meetings: To be arranged
If you live in this area and would like to attend these social meetings, please give Ann a call.

Castleblayney Group

Location: Glencarn Hotel, Castleblayney
Area: Monaghan; Cavan; Louth.
Contact: Jim Murphy
Tel: 042-9371266
Meetings: Meets four to five times yearly on Mondays at 3pm
If you live in this area and would like to attend these social meetings, please give Jim a call.

Photo of Roseleen Clarke receiving her smoke alarmSmoke Alarms

On Wednesday, 26th January, members of the Louth area/Castleblayney Group attended a presentation on fire safety in the home, in conjunction with Louth Community Forum/Louth County Council /Louth Fire Service. The event took place in the Louth County Council Chambers in Dundalk. Afterwards, Mairead Mathews and Brendan Moore, who represent the PPSG on the Louth Community Forum, were given high-quality smoke alarms with a ten-year guarantee, to distribute free-of-charge to PPSG members in the Louth Area.
Mairead Mathews

Castleblayney Group Christmas Party

On Friday, 28th January, the Group held their Christmas party night in the Glencarn Hotel, Castleblayney. There were 14 members and 3 special guests from other Groups present. Everyone enjoyed the fantastic menu the hotel offered, as well as helpful service from the staff. All members went home with a spot-prize on the night. Some members availed of the special concession price to see Robert Mizzell in the ballroom.

Two of the Group from Kildare were most impressed at how welcoming the people from the North East area are, and how willing they are to give a helping hand. We had a great night, which ended in the wee small hours of Saturday morning. Looking forward to the Tullamore AGM, and though we may be in our 50s, 60s and 70s, we can show other people how to party.
Mairead Mathews

Clare Group

Location: The Templegate Hotel, Ennis
Area: Clare
Convenor: Edwin Bailey
Tel/fax: 061-368373
E-mail: edwinbailey@eircom.net
Meetings: Meets four to five times yearly on Wednesdays at 8 pm
If you live in this area and would like to attend these social meetings, please give Edwin a call.

Photo of Castleblayney Group enjoying their Christmas PartyThe Clare Post Polio Support Group met in The Temple Gate Hotel in Ennis on the 13th October 2010. This was a new venue for us and worked very well. We had 12 in attendance with 4 apologies. We gave the first part of our meeting over to a discussion on a Christmas outing in which members agreed to go to The Abbey Tavern in Quin for an afternoon Christmas lunch followed by entertainment by Mr Frankie Kineer and his one-man-band.

Our guest speaker for the meeting was Mr. Liam Toland, Managing Director of Home Instead Senior Care in Limerick. He was accompanied by Aodhnaid Lennon, a member of his care team. Home Instead provide care for the elderly in the home instead of having to go to hospital, or other care facility. Their caregivers will provide help to seniors and their families who desire assistance with activities that used to be simple. Tasks like grabbing a can of soup from a top shelf, doing laundry, tying shoelaces, shopping, visiting the doctor, reading letters – many of these tasks are not easy anymore for our seniors.

Home Instead, or other similar providers, can assist where a family may be living many miles away, or even abroad; the family can then rest assured that mum or dad is being cared for at home. Home Instead can provide a couple of hours care a week, or a number of hours per day, depending on needs and circumstances.

One of the first questions that spring to mind is how much will it cost? Well, it’s not cheap, but when you get over the initial shock at the cost and consider the advantages, it is quite possible that many families could afford it. The cost can be claimed against income tax, which can almost halve the outlay and further, if the cost is shared by a number of family members, it becomes much more manageable. The advantage is that the client still has their independence, they feel safe and cared for, they have companionship and they live in the home they have known for years.

Home Instead Senior Care is a family network of locally owned franchise offices developed with a desire to provide care in the home where loved ones may stay in their homes as they grow older.

Members of our group were very appreciative of the information received on this alternative care service and chatted afterwards with Liam and Aodhnaid over a cup of tea.

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Cork Group

Location: Vienna Woods Hotel, Cork.
Area: Cork; Kerry.
Convenor: Evelyn Wainwright
Tel/fax: 021- 484 7313 or 086-882 9267
E-mail: evelyn99911@hotmail.com
Meetings: Meets four to five times yearly on Wednesdays at 8 pm
If you live in this area and would like to attend these social meetings, please give Evelyn a call.
Congratulations to the Cork Group who have already planned their itinerary for the year as follows:

Meetings:

23 March: Speaker from Citizens Information.
18 May: Update on events and news from the AGM followed by a sing-along.
17 September: “Chill Out” Day.

Outings:

10 July: Summer outing to Killarney.
20 November: Christmas Dinner, 3pm.

Donegal Group

Location: Clanree Hotel, Letterkenny or The Villa Rose Hotel Ballybofey
Area: Donegal; Derry
Contact: Donal K. O’Boyle
Tel/fax 074-9103316
E-mail: donalkoboyle@eircom.net
Meetings: 2-3 times a year at 8pm
If you live in this area and would like to attend these social meetings, please give Donal a call.

Dublin All Hallows/Finglas Group

Location: All Hallows College, Drumcondra
Area: North Dublin
Contact: Eddie Roycroft
Tel/fax 087-2800010
Meetings: Last Wednesday of the month. Daytime
If you live in this area and would like to attend these social meetings, please give Eddie a call.

Dublin South/West Group

Location: Maldron Hotel, Tallaght (Formerly Tower Hotel)
Area: Dublin south and west.
Convenor: Pat Guy
Tel: 01-4566581 or 087-6416472
E-mail: patwguy@gmail.com
Meetings: Meets four to five times yearly on Mondays or Tuesdays - alternating between afternoon and evening meetings.
If you live in this area and would like to attend these social meetings, please give Pat a call.

Dublin Swords Group

Location: Location: Carnegie Court Hotel, Swords
Area: North Dublin
Convenor: Joe McGee
Tel: 086-8137195
E-mail: mcgeeaj@gmail.com
Meetings: Monthly. Daytime
If you live in this area and would like to attend these social meetings, please give Joe a call.

Enniscorthy Group

Location: Riverside Hotel, Enniscorthy
Area: South Wicklow; Wexford; Waterford
Convenor: Povl Thim
Tel: 053-9421857 or 086-8107598
E-mail: povlthim@gmail.com
Meetings: Meets on the 1st Monday of most months at 8pm.
If you live in this area and would like to attend these social meetings, please give Povl a call.

Galway Group

Location: Menlo Park Hotel, Galway
Area: Galway - South, Mayo.
Convenor: Hugh Conlon
Tel: 086-8036145 (preferred) or 091-751750
E-mail: hcon@eircom.net
Meetings: Meets four to five times yearly on Wednesdays at 8 pm
If you live in this area and would like to attend these social meetings, please give Barbara a call.

Kerry Group

Location: Manor West Hotel, Tralee
Area: Kerry, West Limerick
Convenor: Dolly Lawlor
Tel: 066-718 5475 or 087-204 3795
Meetings: To be arranged
If you live in this area and would like to attend these social meetings, please give Dolly a call.

Kildare Group

Location: West Gate Hotel, Clane
Area: Kildare
Convenor: Tom Carberry
Tel: 01-808-1808 (Work) or 087-2335206
E-mail: Tom.carberry@diversey.com
Meetings: Held monthly
If you live in this area and would like to attend these social meetings, please give Tom a call.

Kilkenny Group

Location: Days Hotel, Kilkenny
Area: Kilkenny, Waterford, South Tipperary
Convenor: Susan Dowling
Tel: 059-9726998
E-mail: dowlingsl@eircom.net
Meetings: 4-5 times a year on Mondays or Tusdays at 7.30 p.m.
If you live in this area and would like to attend these social meetings, please give Susan a call.

Limerick Group

Location: Strand Hotel, Limerick
Area: Limerick; East Clare; Nth. Tipperary.
Convenor: Marie Boland
Tel: 061-417928 or 086-2282000
E-mail: marieboland36@gmail.com
Meetings: Meets four to five times yearly on Mondays at 7.30pm
If you live in this area and would like to attend these social meetings, please give Marie a call.

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Mayo Group

Location: The Courthouse Hotel
Area: Ballina; Belmullet; Westport & N. Roscommon
Convenor: Barbara McDonagh
Tel: 091-593664
E-mail: babamcdonagh@eircom.net
Meetings: Meets twice yearly on Wednesdays at 8pm

If you live in this area and would like to attend these social meetings, please give Hugh a call.
All roads led to Hotel Westport for the West Region’s Social Support Group’s gathering and Christmas dinner. With over 27 of us, there was bound to be laughter, song and dance. This all happened on Saturday night, 5 February, with the splendid traditional music of Hollymount’s ‘Rambling Rogues’. We had wonderful songs from Tom Gallery, Tom O’Malley, Anne Burns and the Donegal people. Paula Lahiff recited a lovely poem she wrote. Paula’s niece sang a comedy song about the Rooster.

Bridie McMahon and John Kelly kept the dust off the floor to the music of reels, along with set-dancing thrown in. Marion Gallery gave us a taste of the Clare steps. Josie Joyce’s daughter-in-law gave us a lovely display of traditional Irish music on the fiddle, as did Tom O’Malley, while Noel McMahon from Co. Leitrim lifted everybody’s heart with his fantastic solo performance on his accordion, as well as joining in with the fiddle players.

The group sang, danced and played music well into the early hours. What a talented bunch. In the West we know how to celebrate our gifts and talents and coming together that weekend really fulfilled everybody as all contributed in different ways.

A word of thanks to the PPSG for support towards the dinner and entertainment. We will do it all again during the summer!

Thanks to Barbara McDonagh, who organised the weekend. Well done! Not forgetting to also thank MC, Bridie McMahon, for her professional handling of the evening and for preparing the above report.

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Midland (Athlone) Group

Location: Cregan Court Hotel, Athlone
Area: Westmeath; Roscommon; E. Galway
Convenor: James Kinahan
Tel: 0906 481372 or 087-6768076
E-mail: jtkinanah@gmail.com
Meetings: Meets twice yearly at 8pm
If you live in this area and would like to attend these social meetings, please give Jimmy a call.

Navan Group

Location: Ardboyne Hotel, Navan, Co Meath
Area: Meath; Louth
Convenor: Joan Gargan
Tel: 046-9432956 or 086-3753024
E-mail: joangargan@eircom.net
Meetings: 2nd Monday of every 2nd month at 7.30 p.m. –next meeting 9 August 2010

Warning to Vincent: You don’t get much past the folk in the Midlands!If you live in this area and would like to attend these social meetings, please give Joan a call.

The Group held their postponed dinner at the Ardboyne Hotel, Navan, on 14 February, St. Valentine’s Day, with twelve in attendance. They had lovely spot prizes, including a voucher for dinner supplied by the hotel, and spots from several other members. All were “dressed to the nines”, enjoyed a lovely meal, had great chat and put the world to rights. Thanks to Joan Gargan and her team for organising the evening.

Next meeting at the Ardboyne Hotel is on 14 March.

Portlaoise Group

Location: Heritage Hotel, Portlaoise.
Area: Offaly; Laoise; Nth. Kilkenny.
Contact: Bernie O’Sullivan
Tel: 057-9343760 or 086-0647227
E-mail: ggcp@iol.ie
Meetings: To be arranged
If you live in this area and would like to attend these social meetings, please give Bernie a call.

Sligo Group

Location: City Hotel, Sligo
Area: Sligo; South Donegal; North Leitrim
Convenor: Brian Crummy
Tel: 071-9160404
Meetings: To be arranged
If you live in this area and would like to attend these social meetings, please give Brian a call.

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LETTER TO THE EDITOR

I was looking at a website called spezify, and you key in words, and the program searches all the social media for those words. I keyed in Post Polio and found the Ireland Post Polio website. What a great group... and found this wonderful newsletter. Articles include travelling while disabled in the Ukraine and the Charter of Rights for those living with Chronic Pain. HOORAY...this group rocks!

Micki Minner – by email from Tucson, Arizona in the US
(Everyone take a well-deserved bow, especially John, who edited the edition of “The SURVIVOR” referred to.)

THOSE SHOES ARE MADE FOR WALKING

If you have customised shoes that are in reasonable condition, why not have them repaired? You may like to get the repairs done by the original shoemaker or by someone else. If you need some assistance with this why not contact Lillian at 01 8898920?

TALES OF PERCEPTION

I am going to tell you two stories:

I know a person who has a physical disability. He’s very disabled. He has no use of his arms or legs. He can control the movement of his head – well most of the time. He depends on others for all his personal care needs and always will.

He has to be fed. That can be a messy business for him. He has no speech. He has some medical problems and has to go into hospital from time to time and when that happens he worries about himself and then he gets depressed.
When you hear his story you could be forgiven for wondering what is the point. What has he to live for?

Now I’ll tell you another story

It’s about a man in his 30s; he is an expert in the use of technology. He is brilliant with computers and his hobby is researching and downloading music from the Internet. He’s a great communicator and is a very social person. He has gorgeous brown eyes and when he smiles his whole face lights up.

He has two passions in life: food and good looking women. He has a wicked sense of humour. He’s attractive – the sort of person you just love to be around.

The two stories I have told you are about the same person, his name is Stephen. All the facts about him are true.
In the first I defined Stephen only in terms of his disability. In the second I defined him by the wonderful and extraordinary person that he is.

My Question to you is:
How do you define yourself?
What inspires you to be you?

Ed Note: The person is not a polio Survivor, but could be; the person telling the story also has a disability.

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Towns of Munster Quiz
Answers to Quiz in Winter Issue of “The Survivor”

1) Not merely a street (10) Millstreet

2) Rhymes with a gondoliers birthplace (5) Ennis

3) Where Kings are interred (6)    Cashel

4) If this were soft ground it would be a biscuit (6)   Mallow

5) Family connections on offer (7)   Kinsale

6) Lovely and fair (6) Tralee

7) Letter change and we will have chimes to jingle (6) Dingle

8) It could take time to get there (9)  Tipperary

9) This centre is a heavy weight (8) Midleton

10) Neidin (7) Kenmare

11) Sounds like an ambulance is blowing its siren (6) Nenagh

12) Town afloat (4) Cork

13) Has experienced many a pass out (10) Templemore

14) Church in a stampede (7) Kilrush

15) Pipers paradise (14) Milltown Malbay

16) Chapel with access to your heart (6) Kilkee

17) Listing while drying my back (8)  Listowel

18) Rock on a river (13) Carrick-on-Suir

19) Fortified Isle (12) Castle Island

20) Have you the nerve to fulfil (5) Adare

A FEW WORDS OF WISDOM

Never forget that today is a gift. That’s why it’s called “The Present”.

Don’t look at problems as stumbling blocks, but as stepping stones.

It’s what we share, not what we give, that makes us great.

The word “impossible” takes more effort to write and say than the word“possible”.

 

Flyer designed by David McGuirk. David’s mother,

Towns of Connaught Quiz

Each clue will reveal a town in Connaught.
With a pen, map and a few friends, enjoy this quiz.

1) Festering (5)_________

2) A lake that gives hope (8) _________

3) An urban “Charlie” (11) _________

4) Strange fish ringing (9)_________

5) A lion dwells under the cliff (7)_________

6) Proceed sneakily (5)_________

7) No longer shining (7)_________

8) Sly crossed (7)_________

9) This town had good luck (11)________

10) Opposite starboard in the west (8)_________

11) Vintage vehicle from the Banner county (11) _________

12) Could be thought of as ordinary or run-of-the-mill (9)_________

13) Footie in a wild fruit (11) _________

14) Sunshine on this fort (9) _________

15) Once there was a quiet man here (4)_________

16) Strange Indian dish (10)________

17) Tavern in a fortress (9)_________

18) Soccer in a vestment (10) _________

19) Rock on a river (16)_________

20) Mint haven for a boat (7)_________

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DRIVING UP EVEREST

Photo of Joan McDonnell at the River Jordan Baptismal SiteAs I walk to my car at lunchtime, I begin to wonder if I’ll be able to drive home. It’s been a week since I’ve driven my adapted car due to a fault with the servo clutch. (I use a servo-operated clutch due to the fact that I can’t depress the clutch with my left leg due to the effects of polio.) The clutch has now been repaired, but when I last had a problem with it, it still hadn’t functioned properly after the repair. On that occasion I’d been left stranded. Now I worry that I might be stranded again.

This morning, my husband Vincent, who doesn’t need to use the servo clutch, had driven me to work. He often travels into town with me in the morning and walks home to get his daily exercise. Now I’m regretting that I didn’t ask him to check that the servo clutch was working properly.

With a sense of trepidation I sit into the car, start the engine and try to engage gear with the gear stick. The response is an expensive-sounding crunching noise. I try pressing the button on the gear stick, which also operates the servo clutch. But the clutch pedal doesn’t budge and I know I’m in trouble. Yet I don’t want to imitate ET and phone home. After all I’m “New Millennium Woman”. I will get this car going.

I depress the clutch with my right foot and engage gear, but now can’t reach the accelerator. I try depressing the clutch with my left foot, but it’s just too weak. I lie back in the seat and, with all my might, depress the clutch a fraction. The gears again crunch expensively as I engage first. Miraculously though, the car moves forward in kangaroo fashion.
I’m thrilled as I crawl out of the car park. I turn left and face Everest, the uphill climb home. Two hundred yards up the hill I realise that I’ll have to change into second gear. Vincent had once explained the technique of changing gear without using the clutch. You need to get the revs just right and then briskly flick the gear stick from first into second. I try this. The engine stalls.

I attempt my earlier experiment but the hill defeats me. A man emerges from a nearby house inquiring if I’m in trouble. I explain about the problem with the servo clutch but he doesn’t understand.

‘The problem,’ he says firmly, ‘is the handbrake.’ He doesn’t make any disparaging remarks about women drivers, but I can read the words in his eyes. ‘You’re rolling back,’ he adds. ‘I’ll put a stone to one of the rear wheels.’

He does this, then stares at me through the rear window. I’m mortified. But what can I do? I attempt to get going, but fail. I try crossing my legs, wondering what my Samaritan’s must be thinking; probably that I’m indulging in some deviant behaviour. But deviant or not, it doesn’t work.

I try again with the left leg, almost lying flat in my seat, my whole weight on the clutch. I’m pleading with God that the stone is big enough so that I won’t roll back over the man. Desperation works and I manage to depress the clutch sufficiently to crunch into first gear.

I begin to move and can now sit upright. I dare not look back. I build up speed, get the revs just right and then crunch into second gear. Heartened, I engage third gear without any crunch.

I’m going along nicely until I encounter two farmers chatting in the middle of the road, which I’ve found from living in the country is where farmers usually stop for a long chat. I brake. The car does its kangaroo imitation again, jerks to a stop and the engine stalls. Despair overwhelms me until I realise I’ve reached the top of the hill. It’s all downhill from here. I roll forward and see Vincent coming looking for me. ‘What happened?’ he asks when I stop beside him.

‘The servo clutch doesn’t work,’ I say, feeling sorry for myself. ‘It’s taken ages to get home.’

He smiles. ‘Do you realise you’ve done the impossible,’ he says.

‘I suppose,’ I laugh, relieved. ‘But my next car’s going to be automatic.’

Joan McDonnell

PPSG INVITED TO BROADCAST
AGM MASS ON RTE

Photo of Limerick Lady Mayoress, Marie Byrne with Helen Jordan, Ann Shanahan and Marie BolandThe PPSG are privileged to have been invited to have their Sunday Mass following the AGM Conference at the Tullamore Court Hotel, on 8 May, broadcast live at 10am on RTE Long Wave, LW 252 MHz. It is a marvellous opportunity for our members who cannot attend to still be able to share this very special occasion.

We need volunteer singers, a keyboard player, or someone to read during the ceremony. If you intend staying at the hotel overnight on Saturday 7 May, and would like to volunteer, please contact Evelyn Wainwright at Tel. 021 4847313, email: evelyn99911@hotmail.com or myself at Tel. 01 4534150, email: boyneabu@eircom.net

Anne Burns

People with disabilities on their travels – POINTS TO PONDER: PART 1

Booking a holiday

BOOKING FORM FOR AGM

NON RESIDENT Day attendance, including light lunch, is free. Attendance at the dinner on Saturday evening will cost €35 per person. See A below.

RESPITE CARE BREAK A limited number of respite care breaks will be available but you must apply before April 1. There will be no charge for taking this respite care break. All applications will receive a reply before 8th April. See B below.

If you are not successful you will get a further booking form should you wish to book a paid place.

SHORT WEEKEND Light lunch on Saturday and dinner, Bed and Breakfast Sunday. There will be a charge of €110 for a single booking, €180 for a couple. See C below

FULL WEEKEND 2 Bed and Breakfasts, normally Friday and Saturday, lunch on Saturday and one dinner for one or two persons. There will be a charge of €190 for a single booking and €260 for a twin/double booking. See D below

If you would like to stay an extra night on Sunday a charge of €40 per person sharing for Bed and Breakfast will be made

Return in envelope provided, no stamp necessary

Hotel Booking Form

 

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YOUR REPRESENTATIVES NATIONWIDE

HEAD OFFICE STAFF
Tel: 01 889 8920
Fax: 01 889 8924

CHIEF EXECUTIVE
Eamonn Farrell
Email: ceo@ppsg.ie

SERVICES TO POLIO SURVIVORS
Lillian McElvaney
Email: sic@ppsg.ie

CLERICAL OFFICER
Ursula Treacy
Email: info@ppsg.ie

REGIONAL SUPPORT WORKER
Anne Shanahan
Email: anneshanahan@ppsg.ie

BOARD MEMBERS

John McFarlane (Chair)
Tel: 057 9353552
Mobile: 087 202 9830
Email: chairman@ppsg.ie

Paula Lahiff (Deputy Chair)
Tel: 071 916 4791
Mobile: 086 322 4402
Email: paulalahiff@gmail.com

Hugh Conlon (Co. Secretary)
Tel; 091 751 750
Mobile: 086 803 6145
Email:  hcon@eircom.net
secretary@ppsg.ie

Clara Dunne (Treasurer)
Tel: 01 672 1601 (W)
Fax: 01 672 1650
Tel: 01 8335524 (H)
Mobile: 087 227 6202
Email: clara.dunne@caceis.com

Joan Bradley (Board Member)
Tel/Fax: 01 454 9237
Mobile: 086 364 0170
Email: amjbradley@eircom.net

Anne Burns (Board Member)
Tel: 01 453 4150
Email: boyneabu@eircom.net

Jim Costello (Board Member)
Tel/Fax: 01 620 6154 (Mon-Friday)
Tel/Fax: 01 260 0099 (Weekend)
Email: jjcos@indigo.ie

Hugh Hamilton (Board Member)
Tel/Fax: 01 289 4800
Mobile: 087 255 3012
Email: hamsalem@eircom.net

Bridie McMahon (Board Member)
Tel: 094 954 0285
Mobile: 087 958 0567
Email: sbmcmahon70@gmail.com

Séamus Ó Cinnéide (Board Member)
Tel; 01 496 1133
Mobile: 086 8513594
Email: seamus.ocinneide@nuim.ie
higgeide@gofree.indigo.ie

Evelyn Wainwright (Board Member)
Tel/Fax: 021 484 7313
Mobile: 086 882 9267
Email: evelyn99911@hotmail.com

COMMITTEES

Compliance & Governance

John McFarlane (Chair)
Hugh Conlon, Jim Costello, Séamus Ó Cinnéide,
Ethics & Benefits

Paula Lahiff (Chair)
Joan Bradley, Hugh Conlon, Séamus Ó Cinnéide
Fundraising

Hugh Hamilton (Chair)
Anne Burns, James Kinahan, Barbara McDonagh, Bridie McMahon, Evelyn Wainwright
Social Support

Anne Burns (Chair)
Marie Boland, Susan Dowling, Maggie Gillespie, Paula Lahiff, Bridie McMahon, Evelyn Wainwright

Social Support Convenors

Edwin Bailey, Marie Boland, Francis Clancy, Hugh Conlon, Brian Crummy, Susan Dowling, Paddy Fitzpatrick, Joan Gargan, Nuala Harnett, James Kinahan, Dolly Lawlor, Tom Carberry, Barbara McDonagh, Joseph McGee, Jim Murphy, Eddie Roycroft, Povl Thim, Evelyn Wainwright

Phone Support Co-ordinator: Susan Dowling

Phonechat Project Hosts
Paula Lahiff, Shirley Martin, Patricia Milburn

RingRing Project Leaders
Joan Bradley, Stephanie Blake-Ryan, Nuala Buckley, Leo Dempsey, Georgina Farrelly, Joan Gargan, Josephine Gaunt, Patrick Guy, Olive Haslam, Joyce Henderson, Frances Hill, Michael Keegan, Paula Lahiff, Geraldine Mardy, Mairead Mathews, Hugh McHugh, Christine O’Connor, Ann O’Kelly-Guerin, Maureen O’Sullivan, Sheila O’Sullivan, Anne Pepper, Eddie Roycroft, Zaynab Salman

Survivor
Vincent McDonnell (Editor)
Mobile: 087 2849575
Email: newsletter@ppsg.ie

Published March 2011 by
Post Polio Support Group,
Unit 319, Capel Buildings, Mary’s Abbey, Dublin 7
Tel: 01 889 8920
Fax: 01 889 8924
Email: info@ppsg.ie

Registered Charity No: CHY11356
Company limited by guarantee and not having share capital.
Registered in Ireland No: 354283

WILLS

PLEASE REMEMBER THE POST POLIO SUPPORT GROUP IN YOUR WILL, OR REQUEST DONATIONS TO POST POLIO SUPPORT GROUP IN LIEU OF FLOWERS….

BE ASSURED ALL BEQUEST AND DONATIONS WILL BE PUT TO GOOD USE

THANK YOU

MISSION STATEMENT

Our Mission is to create awareness and to provide information regarding the late effects of polio among Polio Survivors, statutory agencies and the wider medical profession, and to ensure that the needs of Polio Survivors relating to their condition are met to enable them to live with dignity

"The SURVIVOR" is supported by:

Donal Murtagh Car Sales trading as WHEELCHAIR CARS IRELAND

Ireland’s Premier Mobility Experts
Glasson Village, Athlone, Co Westmeath
Phone: 090 6439786
Fax: 090 6439786
Mobile: 087 8400403