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The Survivor Newsletter: Autumn 2004

Chairperson fills us in on what’s happening on the ground ...

OUR Presentation to the Joint Oireachtas Committee on Health & Children took place in June as scheduled. Overall, we were extremely pleased with how things went. There was a very good attendance by the Committee Members, which we understand, from comments made, was primarily due to the number of letters received by them from our membership. We very much appreciate this Membership support of our work.

The questions and comments made by Committee members following our presentation were most encouraging. We were complemented on the precise nature and clarity of our presentation, following which the Committee has written to the Department of Health & Children requesting that the Secretary General of the Department come before the Committee in the autumn to answer their queries with regard to why Polio Survivors are not being properly looked after by his Department. Because of this, we will not be meeting with the Principal Officer, Brendan Ingoldsby, at least until the Committee has finished its work on our behalf with the Department.

Our Social Support groups throughout the country are growing in number. We wish to thank the Convener's for their work in the organising and carrying out of these events. They are now taking place in nine areas, namely Bray, Limerick, Galway, Cork, Enniscorthy, and in Letterkenny. Further details of these meetings are in this newsletter.

Our fundraising, a very necessary part of our income, is ongoing. This important work needs the active support of our membership. I have never met anyone who likes doing fundraising, but unfortunately it's a very necessary part of our organisation's financial income, if we are to succeed in the aims and objectives of our Group. The finance raised from the various events and activities is used, along with annual Health Board grants (if granted), to supply equipment and services to our members. Details of fundraising events are usually in the newsletter or are circulated to members. Please contact our office if you are able to arrange any help in this regard.

Regarding the funding of the Carmichael Centre where our office is located, thankfully, they have been granted a temporary reprieve, and have received some funding from the NAHB, which will carry them up to Christmas. In the meantime, it is hoped that discussions will take place between the Carmichael management and Government Departments with regard to rollover/ongoing Core Funding, which is essential for this Centres ongoing existence. We are keeping this position under constant review; as if the Centre has to close it will have serious financial implications for our Group.

Anthony, our Administrator will be leaving our Group's employment around the end of October. Anthony, who will then have been with us for two years, is taking up a position with the Disability Federation of Ireland. On my own behalf and that of the Group, I know we will certainly miss him, and we are grateful for his work, planning and organisation on our behalf. We wish him well in the position he is movsupport and assist our Group's work in his new capacity.

Our new full-time Bookkeeper/Admin Assistant, Ursula Tracey, has commenced in our office. Our accounts work has grown enormously over recent years, and is no longer viable as a voluntary job, as Mary was doing and for which she is due our sincere thanks. Ursula is most welcome, and along with her accounts work, Ursula will be handling telephone inquiries and assisting the Administrator with the work of the Group.

Originally when our Group was formed back in 1993, we were a purely voluntary organisation, and remained so for the first 7 to 8 years. As our Group grew and the administration workload increased, it became obvious to us that professional help was required. While the Board membership has changed somewhat over that period, there has been a voluntary core group carrying a substantial amount of the workload. Unfortunately, we all get older and Polio survivor Board Members also have to cope with the onset of PPS/LEP. It has become increasingly difficult to find people who are prepared to give time to voluntary work. It has therefore been necessary over recent years to employ first a part-time administrator, then a full-time administrator, and now a bookkeeper/admin assistant.

These changes will have implications on our end of year accounts over the next few years. Our administration costs as a percentage of our overall expenses will rise. Hopefully it is not all gloom ahead. With the advantage of this professional help and the results of our Survey, the Board is planning a gradual expansion of our services to our membership. We will do our best to keep you up to date as things progress.

Meet our new Board Member - John McFarlane

JOHN contracted paralytic polio at the age of 18 months in 1949 whilst living in Barnes, London with his parents. He was almost entirely paralysed and spent the best part of 3 years in St Peter’s Hospital, Chertsey. The polio left him with total paralysis of his legs and lower trunk together with restrictions on his right arm that meant he had to use crutches and callipers, and a wheelchair on occasions.

Upon discharge he and his mother went to Hong Kong where his father was serving in the British Army – this was the start of his peripatetic life. Returning to the UK he attended mainstream schooling, and then worked in the insurance Department of Unilever Ltd where he qualified as a Marine Surveyor and Naval Architect. Subsequently he worked for Cunard on the QE 2 before joining British Steel where he rose to Director Commercial Services. At the same time John was conducting research into disability matters and writing for magazines on disability products; he became the motoring correspondent for the UK based social services publication “Caring Today” – cars ranged from Fiesta’s to luxury and sporting models.

In the late ‘80s he took up his travels again but this time for the European Commission with a wide ranging freelance role to investigate the conditions under which people with disabilities lived in the member states. This culminated in him writing a series of reports and books that resulted in a Fellowship at the University of Birmingham.

In 1969 he met Mary who has been his wife for 32 years and in 1997 they returned to her home county of Offaly where they have a purpose built home. John’s condition has worsened considerable over the past 10 years to the point where he is now fully wheelchair dependent but that has not stopped him from travelling extensively both for work and pleasure.

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Book Review

DA VINCI CODE by Dan Brown

Published by Corgi Books 2004
ISBN No.: 0-552-14951-9

LEONARDO Da Vinci has been celebrated over the centuries as one of, if not the, greatest examples of Renaissance man. He was a painter, sculptor, architect, inventor, cryptographer, thinker and still an influence on today's men of science. Dan Brown in his book "Da Vinci Code" has utilised every one of these talents to weave a fascinating tale based on the search for the most holy of hollies - The Holy Grail.

It is an historical fact that there were many opposing factions in the Church both before and after the Renaissance and Dan Brown uses all of these plus many lesser known facts about the orders or societies that existed in the middle ages to build a convincing framework on which he hangs his plot. The Knights Templar existed, as do the Masonic Orders to this day and most people at least in Catholic countries will have at least heard of the more modern Catholic movement Opus Dei. He uses all of these to assist his main character, Robert Langdon, Professor of Religious Symbology at Harvard University solve the mysterious murder of the Louvre Gallery curator. The book follows on, in part a previous novel "Angels & Demons" that involves the Vatican with many similar threads.

Langdon has to turn for assistance to an eccentric English recluse, Sir Leigh Teabing, who is an authority on the legends of the Holy Grail. The first we "hear" of him is the click of his crutches and as he enters down a staircase the sight of callipers below his dressing gown. As we discover Sir Leigh had paralytic Polio as a child and now demonstrates all the symptoms of Late Effects of Polio. He finds good use for crutches and as he says at one point "You were rescued by a knight brandishing Excalibur made by Acme Orthopaedic…….I've just demonstrated the unfortunate benefit of my condition. It seems everyone underestimates you!".

The book is a fascinating worthwhile read and will keep you guessing for hours as to the identity of "The Teacher". It will lead you up many blind alleys linked by a human interest theme, but in the end …………..well read it and find out.

Reviewed by John R McFarlane

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Some Useful Information ...

RICABILITY is the acronym given to the Research Institute of the Consumer Association's work on products for the elderly and people with disabilities. The Consumer Association is probably better known for its "WHICH" magazine and reports.

Recently it has published 5 new reports on mobility matters:-

• Car controls 2004
• Getting a wheelchair into a car 2004
• The ins and outs of choosing a car 2004
• People lifters 2004
• Wheels within wheels 2003

For those in the UK the reports are free of charge in exchange for sending stamps to the value of £0.83 per report. To receive the whole pack here costs £7.02, but for those who have access to the internet they can all be viewed and downloaded at www.ricability.org.uk.

The reports are a must for those thinking of a new car, and adaptations and are a useful source of information and experience in the type of wheelchair to use and how to get it in and out of a vehicle.

The reports are comprehensive and although prices and contacts are UK concentrated the themes covered are applicable to people with disabilities everywhere. Most of the companies mentioned can either supply to Ireland or have agents here.

John McFarlane

(Editor’s Note: John has a complete set of the reports , and if people want specific pieces of advice on this topic, he has offered to assist. All queries need to be directed through the office please!!)

FUND RAISING NEWS

THE LAST few months have been very busy for fund-raising. We are delighted to let you know that PDFORRA, (Permanent Defence Force Other Ranks Representative Association) has nominated Post Polio Support Group as their designated charity for 2004.

The Cork ladies mini-marathon was tremendously successful, with 32 people partaking on behalf of Post Polio Support Group, including 20 representing PDFORRA. There was a most enjoyable gettogether afterwards in the Market Tavern organised by Noel Magner - many thanks to Noel, as well as Maureen O'Sullivan and Stan Notte of PDFORRA.

The Limerick ladies mini-marathon takes place on 10th October and Tom Clifford is organising our team, who will have a get-together afterwards in the Kilmurray Lodge Hotel.

The Dublin ladies mini-marathon has already raised about €14,000 - could members please forward any outstanding sponsorship monies to the office for both marathons as soon as possible. We also want to thank the Power family from Rathfarnham who participated on our behalf in the ½ marathon in the done to father and daughter.

Tim McEvoy and his friends have been working tirelessly for us, including a 40 mile walk in Co. Laois with newscaster Eileen Dunne, as well as having house-to-house collections and one at Newlands Cross. So far, they have raised about €7,000 - many thanks to all concerned.

Thanks also to those who organised cash collections in Bloomfield, Dunlaoghaire, Rathmines, Knocknacarra and Galway City. The PDFORRA Monster Raffle took place on 7th October, winners will be notified. Many thanks to PDFORRA and all contributors.

Further collections are coming up as follows: Cash Collections: Glanmire, Cork on 29/30 October; Douglas, Co Cork on 23/24 November; and Nutgrove Shopping Centre, Rathfarnham on 11/12 November, and Christmas Card collections: Supervalu, Togher, Cork on 22/23 October; Tower Shopping Centre, Blarney on 5/6 November and Frascati Shopping Centre, Blackrock, Co. Dublin on 4/5 November and 11/12 November. These collections are being organised by Anne Burns in Dublin (01- 45534150) and Evelyn Wainright in Cork (086 8829267) who badly need people to help at the above dates. If you or any of your family/friends are able to spare a couple of hours, please phone Anne or Evelyn.

Enclosed with this newsletter you will find your Christmas Card order form with three of the five designs being new. Please return these to the office as soon as possible.

All monies collected from fund-raising is used to provide aids, appliances and services to our members. If you have any needs in this regard, please fill in and return the annual questionnaire or the office, or contact Joan Bradley at 01 4549237.

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To Nap Or Not To Nap - That Is The Question ...

By Dr. Richard Bruno

Q: I get more fatigued as the week goes on and my ability to concentrate gets worse and worse. When the weekend comes I just have to nap. I sleep for three hours on Saturday and feel better. I nap for two hours on Sunday but afterwards my brain feels sluggish and I often have a headache. I then have trouble falling asleep Sunday night and feel even sleepier on Monday in spite of the naps. What am I doing wrong?

A: You have discovered the pleasures and problems of napping. Rest periods and naps can be very helpful, even lifesaving. The National Aeronautics and Space Administration studied daytime rest periods in those for whom fatigue, trouble concentrating and falling asleep can be deadly: pilots. Fatigued flight crews who took brief hourly breaks had improved alertness. These breaks were similar to the two 15-minute breaks that work so well in reducing fatigue in Post-Polio Institute patients.

NASA also studied the effect of what they dubbed “power naps.” Pilots took a planned 40-minute rest period during which they slept for about 30 minutes. After the nap, pilots had increased alertness and performance and relief from what was described as “significant sleepiness.” The same benefit was found in a study of healthy elderly folk: A 30-minute nap at 1 p.m. significantly reduced afternoon sleepiness and fatigue.

But with napping, as with so many much of a good thing. Long naps can actually be detrimental, causing the problems that you have described: grogginess, headaches and a ‘sluggish’ brain after awakening. These symptoms have been given the wonderful name ‘sleep inertia’ (as in physical inertia: (“a body at rest tends to stay at rest”). NASA scientists found that deep sleep begins about 30 minutes into a nap. When deep sleep begins, your brain shuts down and is more likely to feel ‘inert’ when you wake up. That’s why researchers recommend 30 minutes as the ideal nap length: If you prevent yourself from going into deep sleep, there’s no groggy brain and no sleep inertia.

But sleep inertia isn’t napping’s only detrimental effect. If you get too much sleep during the day, you can have trouble falling asleep or staying asleep at night. Lack of night time sleep makes you more fatigued during the day, can make you want to nap longer and gives you even more trouble sleeping at night. So, before you start napping, you have to make sure you’re sleeping well at night and don’t have the breathing problems or muscle twitching that disturb sleep in half of Polio Survivors. You also need to give your body the amount of night time sleep it needs. Don’t expect to feel rested if your body needs nine hours of sleep and you give it only six.

If your sleep is good enough and long enough and you still have daytime fatigue, napping is an option. Before you lie down to nap, set an alarm for 40 minutes so you’ll sleep for only 30 minutes. Although research has shown that a 30-minutes nap is good for pilots and older folk who didn’t have polio, 30 minutes may be too short a nap for Polio Survivors who have brain increase your sleep time by 165 minutes a day. But don’t nap longer than 90 minutes, which is when dream sleep starts. Also, never nap after 5 p.m (that includes dozing in front of the television after dinner) because you’ll make falling asleep at bedtime and staying asleep more difficult.

Remember that naps are only one part of your fatigue management programme. You also need to pace activities, take a 15-minute rest break in the morning, in the afternoon and after lunch. One of these breaks could e substituted with a nap. Remember that the Americans with Disabilities act permits rest breaks - and even naps - as reasonable accommodations in the workplace. Some days you may not need a nap and can just rest. Or you may plan naps for every Saturday and Sunday. However, long week-end naps aren’t substitutes for too little sleep during the week.

Whether you rest or nap during the day, it is important that you keep a consistent daily schedule, including on weekends, with specific times to go to sleep, to wake up, and to take your rest breaks or nap. This schedule will train your rain when it should be sleeping and when it should be awake so that you can manage your fatigue in the cockpit … or wherever you work.

(Dr. Bruno is Chairperson of the International Post-Polio Task Force and Director of the Post-Polio Institute and International Centre for Post-Polio Education and Research at Englewod (NJ) Hospital and Medical Centre )

NOTE: This article is for information only and is not intended as a substitute for professional medical advice.)

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HOLIDAYS AND THINGS ...

TAKING A BREAK
By: Joan Bradley

RECENTLY I had occasion to require Bed and Breakfast while in the Cork region. I was using my wheelchair exclusively as I had left my car at home. I was recommended to use a wheelchair accessible B and B in Innishannon, a few miles from Cork city.

This facility proved excellent and I would like to recommend it to anyone seeking accommodation in that area. The owner is herself a wheelchair user and had the house built with such in mind. There is a lift to the upper floor, the doors are wide and all facilities are at a height suitable for transferring. There is a hot tub with a hoist and a recreation room to be enjoyed. It is B and B only, but I was told there is a good pub in the town. There are 2 bedrooms for disabled guests.

Name and address :-
Ceol na n Ean,
Innishannon Village,
Co Cork.
Tel. Una at 021 4776147
Email ceolnanen@eircom.net

FULL MARKS TO WATERFORD CITY FOR ACCESSIBILITY

By: Paula Lahiff

DURING the summer we took a minibreak to the sunny south east and were very impressed with the accessability of two tourist amenities in Waterford city. We visited Waterford Crystal and it was totally wheelchairfriendly. There was a bus shuttle from the reception area to the factory whichhad a wheelchair lift. The visit was most pleasant, with friendly and helpful staff, an interesting exshibition of how the crystal was made, and a reasonably priced restaurant.

We then proceeded to the museum of Irish Treasures, again wheelchairinteresting two hours. Well done Waterford, we will be back.

REQUEST FOR POLIO ARTIFACTS FOR NATIONAL MUSEUM OF IRELAND.

THE National Museum of Ireland has no artefacts relating to Polio. We would like to address this and are currently looking for material, especially relating to children in the 1950s. We are also interested in acquiring objects relating to vaccination. If anyone has material that they would consider for the Museum they can contact me at the following address:

Clodagh Doyle
Assistant Keeper,
Irish Folklife Division,
National Museum of Ireland
Tel: (01) 6486325.

PLEASE RETURN YOUR QUESTIONNAIRES

OUR annual questionnaire was sent out to all members earlier this year, asking what aids, appliances and services you felt that you would need this year. Please fill out and return these questionnaires to the office as soon as possible, and your requests will be treated in strict confidence by Joan Bradley our secretary.

If you do not have a questionnaire, please phone Ursula at the office, and she will put one in the post to you.

DISABLED PERSONS HOUSE GRANT

With thanks to Donegal member for this information - Ed.

WE have had so many complaints about the application of this grant; the time it takes to process, the amount given not near the 90% advertised, that does not mean to say that you should not apply for this grant, and your application must be carried out exactly as follows:

The following forms must be submitted along with the application form, which is available from the housing department of your Co. Council; Completed Tax Form. Please ensure applicant’s Tax Reference number is quoted, together with contractor’s C2 number, or copy of his Tax Clearance Certificate, whichever is applicable;

• Hand Drawn Plan, outlining existing dwelling, together with proposed works;
• Detailed Contractor’s Estimate Copy of planning permission, if required;
• Medical Report (which should have URGENT written on it) .

Once the Co. Council has your application, they will send out an O.T. and an engineer to survey your house and your needs. They will furnish their reports to the Co. Council.

You will only get this grant once, so make sure that you put in for all the adaptations you will need, now and into the future.

ON NO ACCOUNT commence the work until your application has been approved by the Council.

MAKE SURE YOU ARE REGISTERED WITH THE NPSDD

ARE you Registered? If you are under 66 years of age, with or without a medical card, please register with the National Physical and Sensory Disability Database at your Health Board. This database is confidential, and we are assured that your personal details will not be given out to any other Government Department.

Statistical information only is used in compiling funding requirements for

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AROUND THE REGIONS ...

BRAY GROUP:
Convenor: Belinda Redmond
Tel: 01-2860251
Email: redmond286@eircom.net

Meets the first Tuesday of every month from April to September, at 8.00 p.m.at the Esplanade Hotel, Bray. Areas: North Wicklow, South Dublin They are planning a Christmas Party in December, if you are in this area and would like to attend, give Belinda a call.

LIMERICK GROUP:
Convenor: Tom Clifford
Tel: 061-375115
Email: Tomclifford1@eircom.net

Meets the first Wednesday of every second month at the Kilmurray Lodge Hotel, Limerick. Areas: Limerick, Clare, Kerry. Next meeting will be on 10th November at 8.00 p.m., where they will have a talk on counselling and its help in coming to terms with PPS/LEP. They are planning a Christmas party on 1st December, if you are in this area and would like to attend, please give Tom a call.

ENNISCORTHY GROUP
Convenor: Ann O’Kelly Guerin
Tel: 053-32633
Email: aguerin914@hotmail.com

Next meeting will be held on November 1st in Riverside Hotel, Enniscorthy at 8.00 p.m.
Areas: South Wicklow, Wexford, Waterford

GALWAY GROUP
Convenor: Bridie McMahon
Tel: 087 9580567
Email: bridnimhathuna@eircom.net

Meets on the first Wednesday of every second month at the Menlo Park Hotel, Galway at 8.00 p.m. Areas: Galway, Mayo. They are planning a Christmas party area and would like to attend, please give Bridie a call.

CORK GROUP
Tel: 086-8829267
Email: evelyn99911@hotmail.com

Their first meeting was very well attended with nearly 50 people. There was lots of questions raised and a good discussion took place. Next meeting will be held on 10th November at the Vienna Woods Hotel, Cork, at 8.00 p.m. Area: Cork (City and County) and Kerry. They are planning a Christmas party in December, if you are in this area and would like to attend, give Evelyn a call.

LETTERKENNY GROUP
Convenor: John Mangan
Tel: 074-9137465

First meeting was held on 2nd October at The Holiday Inn, Letterkenny.
Areas: Donegal, Derry.

• Difficulty in obtaining the Disabled Person’s House Grant
• Difficulty in convincing their doctors about PPS/LEP
• Difficulty in obtaining the primary medical certificate
• Difficulty in obtaining medical cards
• Difficulty in obtaining a Disabled Person’s Car Sticker
• Most people did not know about the NPSDD or that the NWHB had a keyworker in Donegal
• Many people did not know about the Post Polio Support Group – this was the first time they had received any information re their Polio work because of their condition.

PORTLAOISE GROUP:
Convenor: Paddy Fitzpatrick
Tel: 0505-46738
Email: paddyfitz3@eircom.net

Their first meeting was well attended with 15 people turning up, including some new members. They had a great chat and a good evening was had by all. Next meeting will be held on Nov. 2nd in Heritage Hotel, Portlaoise. (Please note change of location).
Areas: Offaly, Laois, Kilkenny.

They are planning a dinner in the New Year, so if you in this area and would like to attend, give Paddy a call.

MULLINGAR GROUP:
Convenor: Sean Mulligan
Tel: 0906-494016

First meeting was held Mullingar Park Hotel, Mullingar on Wednesday 13th October. (Report will be in next newsletter). Future meetings to be notified.

Areas: Monaghan, Cavan, Meath Westmeath, Longford, Athlone

NEWBRIDGE GROUP:
Convenor: Paddy Moyles
Tel: 059 9141283(Evenings)

First meeting was held on Tuesday 12th October at the Keadeen Hotel, Newbridge.. (Report will be in next newsletter). Future neetings to be notified.

Areas: Carlow, Kildare.

CONVENORS WANTED IF YOU would like to set up or help with the organisation of a Social Meeting in your area, please contact Hugh Hamilton or Paula Lahiff and they will support you in any way they can.

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Report on Annual Southern Area Information Day

By: Maureen O'Sullivan

THIS YEAR’S gathering for Polio Survivors in the Cork/Kerry region was held on Saturday 18th September. The venue was our usual one at St. Dominic's Conference Centre, where we were made very welcome and well looked after. Twenty five members attended with members coming for the morning or afternoon sessions as it suited them. We were delighted to have Joan Bradley with us and appreciated the long day she put in travelling to Cork that morning on the 8.30 a.m. train. Joan took the opportunity to talk to members on an individual basis and as usual gave good advice which was most welcome.

The morning session was given by Rabi Panda, Senior O.T. in the Neuroscience Dept. of Cork University Hospital. Rabi outlined the problems faced by Polio Survivors and suggested ways of alleviating them (everyone got a copy of his presentation). His principle message was DON'T GET OVER-FATIGUED and do take short rest breaks - preferably lying down - during the day. Rabi then proceeded to produce a seemingly endless stock of useful small aids and appliances from a small grip for a biro to stocking aids and bath sponge. Afterwards he met everyone in the room and discussed individual difficulties and helped them try out some of the aids and appliances as appropriate.

After a relaxing lunch, Jean Kavanagh, a Stress Management Tutor, spoke on "The Wellness Journey - coping with daily living". Her course is based on the writings of the late Dr. Herbert Dunn, who used the term "wellness" in his writings about the pursuit of optimal well-being, describing it as ever-changing process of growth towards an elevated state of suburb well being". "Wellness is a mind set of life-long growth and achievement in the emotional, spiritual, physical, occupational, intellectual, environmental and social dimensions …"

In the time available, Jean could only introduce members to the idea, and this she did in her informative talk, simple relaxing exercises and plenty of fun. She finished her session with a guided time of meditation to music.

Following the evening meal, Joan talked about the work of the Post Polio Support Group and plans for the future. Also discussed were suggestions for the next social evening in November with Evelyn Wainright eagerly listening to views and suggestions for the meeting.

The day finished with a very meaningful and peaceful Mass and talk from Fr. Simon Roche, O.P., which was a source of strength and comfort for the year ahead.

ADMINISTRATOR – Anthony Carrick
OFFICE ASSISTANT – Victor Purcell

HEAD OFFICE
Tel/Fax 01 873 0338
E-mail: info@ppsg.ie
Website: http://www.ppsg.ie

BOARD MEMBERS

Jim Costello: (Chairperson)
Tel/Fax: 01 668 6986 (H)
Tel/Fax: 01 620 6154 (Hosp)
Email: jjcos@indigo.ie

Joan Bradley: (Secretary)
Tel/Fax: 01 454 9237
Mobile: 087 7637598
Email: secretary@ppsg.ie

Mary McEvoy: (Treasurer)
Tel/Fax: 0502 27204
Mobile: 087 240 1591
Email: treasurer@ppsg.ie

Paula Lahiff: (Newsletter Editor)
Tel/Fax: 071 64791
Mobile: 086 322 4402
Email: newsletter@ppsg.ie

Hugh Hamilton (Fund Raising Coordinator)
Tel: 01 289 4800 Fax: 01 289 2394
Mobile: 087 255 3012

Frank Jones
Tel: 01 820 0320
Mobile: 087 240 1591 or 087 9385537

Hugh Conlon
Tel: 091 751 750 (H)
Mobile: 086 803 6145
Email: hcon@eircom.net

Phillo Mullaney
Tel: 01 832 1629
Mobile: 087 907 4758

Anne Burns (ex oficio)
Tel: 01 453 4150
Email: anne.burns@agriculture.gov.ie

REGIONAL REPRESENTATIVES

Midland Health Board Region:
Patrick Fitzpatrick
Tel/Fax: 0505 46738
Email: paddyfitz@eircom.net

Mid Western Health Board Region:
Noreen Mullane:
TelFax: 061 302830

Southern Health Board Region:
Maureen O’Sullivan:
Tel: 021 4372 017
Fax: 021 4376 032

South Eastern Health Board Region:
Ann O’Kelly Guerin
Tel: 053 32633

Western Health Board Region:
Barbara McDonagh
Tel/Fax: 091 593 664
Email: babamcdonagh@eircom.net

North Western Health Board Region:
Paula Lahiff
Tel/Fax: 071 64791
Email: newsletter@ppsg.ie

North Eastern Health Board Region:
Jackie Minnock
Tel/Fax: : 042 937 7037
Email: jackiem@gofree.indigo.ie

South Western Area Health Board, & Northern Area Health Board
Joan Bradley
Tel/Fax: 01 454 9237
Email: secretary@ppsg.ie

Membership of the Post Polio Support Group is only €10 per year. If you would like more information about the group please contact Head Office at the phone number above.

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Tel: +353 1 889 8920 Fax: +353 1 889 8924 Email: info@ppsg.ie