Links
- Post Polio Links
- Post Polio Groups, Medics, Health - Worldwide Listing
- Polio/Post Polio - Medics Info - Worldwide
- Polio Eradication Links
- Irish Government/State Links
- Irish Health Service Links
- Disability/Health Links - Ireland
- Disability/Health Links - Worldwide
- Holiday/Travel Information for the disabled
- Polio Newsgroups, Chatlines and Mailing Lists
- Useful Voluntary Organisation in Ireland
- Mailing Lists
Post Polio Links
Lincolnshire Polio Network Extensive information service
for Polio Survivors and Medical Professionals and offers an expanding catalogued
library of full text articles on Post Polio Conditions plus resource directories
and newsletters.
www.ott.zynet.co.uk/polio/lincolnshire/
British Polio Fellowship Information about this British Polio
Survivor support group. PPS. Q&A, publications, library, news and message
board.
www.britishpolio.org.uk/
Post-Polio Health International - USA Information source
for Polio Survivors, Ventilator Users and Medical Professionals. Publishers
of Post-Polio Health and Ventilator Assisted Living.
www.post-polio.org/
Post-PolioUK.org An information, support and self-help network
of and for survivors of the viral disease Poliomyelitis
www.post-poliouk.org/
Polio Canada Polio Canada is here for you. Through five main
services, Polio Canada supports and informs the community and health care professionals.
www.poliocanada.com/english/home.asp/
Australia, Post-Polio Network (NSW) Inc The objective of
this Network is to provide advice through an information kit, regular newsletters,
website and bulletins on Polio and the management of its late effects.
www.post-polionetwork.org.au/
Ernie Wollering's Internet PPS Resources Useful worldwide
info and updates regarding PPS and Support Groups
rlis.com/kelownadays/Eric/ernie.html
Post-Polio Syndrome Central Search or browse this comprehensive
listing of PPS internet resources, original papers, surveys and polls.
www.skally.net/ppsc/
Polio Experience Network Polio Experience Network offers
information, inspiration, ideas and resources to help you understand polio
and post-polio syndrome, and to confidently manage life with it.
www.polionet.org/
Grace Young, Occupational Therapist, USA. Grace Young's energy
conservation site
www.geocities.com/hotsprings/4713/
Harvest Centre. For Polio Survivors. Dedicated to providing
Polio Survivors, their families, physicians and therapists with the facts about
the cause and treatment of PPS, because There Is No More Time to Waste.....
www.members.aol.com/harvestctr/pps/polio.html
International
Post Polio Support Organization IPPSO is an international
support organization established to assist persons experiencing PPS, their
families and friends. IPPSO is also a site maintained for the purposes
of support, education, communication, and as a forum to meet other people
with PPS around the world.
www.ippso-world.org/
European Polio Union (EPU) Member Post Polio organisations
BELGIUM
Post Polio Belgium
www.postpolio.be
Association Francophone Polio&Post-polio (AFPPP)
www.afppp.be
Association Belge des Paralysés (ABP)
www.abpasbl.be
DENMARK
Landsforeningen af Polio-, Trafik- og Ulykkeskadede (PTU)
www.ptu.dk
FINLAND
Suomen Polioliitto Ry
www.polioliitto.com
FRANCE
Groupe de Liaison et d’Information Post-Polio
www.post-polio.asso.fr
GERMANY
Bundesverband Polio e.V.
www.polio.sh
ITALY
Federazione Nazionale fra le Associazioni dei Poliomielitici Italiani
IRELAND
Post Polio Support Group (PPSG)
www.ppsg.ie
NETHERLANDS (The)
(Post)Polio Group from the VSN (Vereniging Spierziekten Nederland)
www.vsn.nl
NORWAY
Landsforeningen for Polioskadde
www.polionor.org
SCHWEIZ/SWITZERLAND
Schweizerische Interessengemeinschaft für Poliomyelitis Spätfolgen (SIPS)(Deutsch/German)
Communauté Suisse d'intérêt pour les suites tardives de la poliomyélite (CISP) (Français/French)
Comunità Svizzerad'interessi dei postumi tardivi della poliomielite (CSIP) (Italiano/Italian)
www.polio.ch
SPAIN
Associatión Afectados de Polio y Sindrome Postpolio
www.postpolioinfor.org
Associats de Polio I Postpolio de Catalunya (APPCAT)
www.appcat.org
SWEDEN
Riksförbundet för Trafik-, Olycksfalls – och Polioskadade (RTP)
www.rtp.se
U.K.
The British Polio Fellowship
www.britishpolio.org.uk
Other European Post Polio Organisations
CZECH REPUBLIC
Asociace Polio Ceské Republiky
GERMANY
Polio Selbsthilfe e.V.
ITALY
Associazione Nazionale Polio e Sindrome Post-Polio
www.postpolio.it
SLOVENIA
Paras Drustvo Paralitikov Slovenije
www.drustvo-paralitikov.si
SPAIN
Asociación de Afectados de Polio y Sindrome de Post-Polio de Castilla y León
Post Polio Groups, Medics, Health - Worldwide Listing
Lincolnshire Polio Network
International, National and Local UK Support Organizations
www.ott.zynet.co.uk/polio/lincolnshire/directory.html
Post-Polio Health International
International Post-Polio Clinics, Health Professionals, Support Groups,
and Resources List
www.post-polio.org/ipn/locate.html
Polio/Post Polio - Medics Info - Worldwide
National Institute of Neurological Disorders & Strokes Post
Polio Syndrome (PPS), Description, Cause, Diagnosis, Treatment, Exercise etc….
*Modified from: Post-Polio Syndrome: Identifying Best Practices in ...
www.ninds.nih.gov/disorders/post_polio/post_polio.htm
www.eMedicine.com Launched
in 1996 and comprises one of the largest and most current Clinical Knowledge
Base available to physicians and health professionals. Information which should
be of interest to your doctor(s)
www.emedicine.com/pmr/topic110.htm
John R Bach, MD. (Respiratory medicine) The Centre for Noninvasive
Mechanical Ventilation Alternatives and Pulmonary Rehabilitation
www.DoctorBach.com/
Lincolnshire Post-Polio Library There are currently over
100 articles available on this site.
www.ott.zynet.co.uk/polio/lincolnshire/library.html
Post-Polio-Med A forum for questions and answers to and from
post-polio syndrome researchers, physicians and other post-polio syndrome medical
professionals, Polio Survivors, family, friends, students and others who are
interested in post-polio syndrome. This includes, but is not limited to: questions,
answers and information about post-polio syndrome research, clinical issues,
clinical trials, current treatment practices and support group meetings and
information.
www.skally.net/ppmed/
Polio Eradication
WHO (World Health Organisation) WHO, Rotary International,
CDC and UNICEF polio eradication initiative
www.polioeradication.org
UNICEF Assisting governments in their efforts to immunize
every child against polio until polio transmission has stopped, so that the
world can be certified polio-free.
www.unicef.org/immunization/index_polio.html
Rotary International "Polio Plus Program"
www.rotary.org/foundation/polioplus/index.html
Irish Government/State Links
Department of Health & Children
www.doh.ie/
Department of Finance
www.finance.gov.ie/
Department of Justice, Equality and Law Reform
www.justice.ie/
Department of Social and Family Affairs
www.welfare.ie/
Department of Transport and the Marine
www.transport.gov.ie/
Department of Environment, Heritage and Local Government
www.environ.ie
Department of Community, Rural and Gaeltacht Affairs
www.pobail.ie/
Department of Enterprise, Trade and Employment
www.entemp.ie/
Department of an Taoiseach
www.taoiseach.gov.ie/
Department of Arts, Sport and Tourism
www.arts-sport-tourism.gov.ie/
Department of Education and Science
www.education.gov.ie/
Department of Agriculture, Fisheries and Food
www.agriculture.gov.ie/
Department of Communications, Energy
and Natural Resources
www.dcmnr.gov.ie/
Department of Defence
www.defence.ie/
Department of Foreign Affairs
www.foreignaffairs.gov.ie/
European Parliament
Provides Information for Irish Citizens on the European Parliaments role and
powers, and Irish MEPs contact details and their activities etc.
www.europarl.ie/
Office of the Public Works
The Office of Public Works is the Government's principal engineering agency,
responsible for restoration, conservation, town planning, public access,
etc.
www.opw.ie/
Citizens Information Board
The Citizens Information Board is the national support agency responsible for
supporting the provision of information, advice and advocacy on social services.
www.citizensinformationboard.ie/
Irish Health Service
Health Service Executive (HSE).
Irish Health Service organisation
www.hse.ie/en/
Click on your HSE Area below to contact YOUR Local Health Office:
HSE
Dublin North East
North Dublin , Louth, Meath, Cavan, Monaghan
HSE
Dublin Mid-Leinster
South Dublin, Wicklow, Kildare, Laois, Offaly, Longford, Westmeath
HSE
West
Limerick, Tipperary North, Clare, Galway, Mayo, Sligo, Roscommon,
Leitrim, Donegal
HSE
South
Kerry, Cork, Waterford, Wexford, Carlow, Kilkenny, Tipperary South
Disability/Health Links - Ireland
Disability Federation of Ireland
National Umbrella Organisation for voluntary non-statutory agencies who provide
support services to people with disabilities and disabling conditions
www.disability-federation.ie
Irish Wheelchair Association
The Irish Wheelchair Association (IWA) is the national organisation
of people with limited mobility, with over 20,000 members and service users
www.iwa.ie/
Central Remedial Clinic
The Central Remedial Clinic is a non-residential national centre
for the care, treatment and development of children and adults with physical
disabilities.
www.crc.ie
Disabled Drivers Association
An organisation of disabled people working for disabled people,
promoting independence and equal opportunity through mobility. The association
provides an extensive information, advice and support service to members.
ireland.iol.ie/~ability/ddai.htm
The Wheel
The Wheel is a support and representative body connecting Community
and Voluntary organisations across Ireland. Established with a mandate from
over 200 organisations and individuals, The Wheel has evolved to become a
resource centre and forum for the Community and Voluntary sector.
www.wheel.ie
Health Research Board
Improving Health through research and information
www.hrb.ie
Assistive Technology -- CRC listing
Assistive technology sites, download links for Assistive technology and general
disability resources
www.crc.ie/aphrodite/linx.htm
Able Access
An organisation established to provide information for members of
the community who are disabled. It is highly accessible for people with visual
impairments and other disabling conditions and is one of the most functional
and congenial website services.
www.ableaccess.org
Disability Information (Ireland) Ltd.
Disability Information Ireland aim to provide easy access to a comprehensive
on-line information service for people with disabilities.
www.disability.ie
Disability/Health Links Worldwide
Disabled Drivers Motor Club, UK
www.ddmc.org.uk
Yourable.com
www.yourable.com
Travel & Access information for disabled and mature travellers
USA.
www.access-able.com/
American National Institute of Health
www.nih.gov/
American National Institute Of Health – Institutes & Offices
www.nih.gov/icd/
American Heart Association
www.amhrt.org/
American Cancer Society
www.cancer.org/
Disabled Accommodation Miami - Apartments for rent in Miami
Beach, all Wheelchair Accessible, including roll in shower, balcony and kitchen
www.disabledapartments.com
Holiday/Travel Information for the disabled
Tourism Ireland For International Visitors
www.tourismireland.com
Discover Ireland Tourist/Holiday information on Ireland
www.Ireland.ie/
Tourism for ALL UK Tourism for All UK has lists of inspected
accessible accommodation in the UK and at selected overseas destinations. National
UK Charity conceived in 1979 (as Holiday Care) to provide holiday and travel
information to disabled & older people.
www.tourismforall.org.uk
Disabled Holiday Directory Search the directory
of accessible properties across the United Kingdom, Europe, Africa and America
for your ideal holiday location.
www.disabledholidaydirectory.co.uk
DisabledGo Detailed access information which will empower
you to judge for your self which hotels, cinemas, restaurants, solicitor’s
offices, pubs, train stations – all kinds of shops and services- are
accessible to you.
www.disabledgo.info
All Go Here This site is aimed at the travel industry including
travel agents, but can be used equally as well by consumers, particularly people
with disabilities, their carers and/or families.
www.allgohere.com
Accessible Barcelona Craig Grimes the founder of AccessibleBarcelona.com
has always had a yearning to travel. We hope that this website gives readers
some confidence and encouragement to travel.
www.accessiblebarcelona.com
Calvert Trust A wide range of activities for people of all
ages including abseiling in a wheelchair or sailing.
www.calvert-trust.org.uk
Bluebell Railway One of their carriages has been extensively
modified with double-doors, wheelchair lifts and an open saloon. The adapted
saloon provides a much more enjoyable way to travel, and can accommodate larger
parties with entirely flexible seating and a panoramic view from the windows.
www.bluebell-railway.co.uk
King Line day boats - Norfolk Seats 11 or 825KG max. Joystick
control if required for use by wheelchair user. Safe level boarding area to
help get you on board. Toilet on board (not a separate compartment. Pull round
curtain on two sides). All weather cover for wet days. Staff "Welcome
All" trained.
www.norfolk-broads.co.uk
Holidays for All Whether you'd like to take a seaside break,
an overseas holiday, enjoy the scenery of the lakes or the Scottish highlands,
or want a base from which to explore the UK countryside, there's sure to be
somewhere that meets your requirements. Holidays for All is a group of the
UK's leading disability charities working together to promote quality, accessible
holiday breaks.
www.holidaysforall.org.uk
Vitalise Vitalise (formerly Winged Fellowship Trust) is a
national disability charity providing breaks for disabled adults, children
and their carers at five accessible UK Centres in Cornwall, Nottingham, Southport,
Essex and Southampton.
www.vitalise.org.uk
Grooms Holidays Grooms Holidays offer a select choice of
hotels and self-catering accommodation around the UK. There are a variety of
attractive coastal and countryside holiday choices to suit different tastes.
www.groomsholidays.org.uk
Chalfont Line Chalfont Line has holidays in the UK and elsewhere
with accessible coaches – including the Dutch bulb fields for example:
www.chalfont-line.co.uk
Enable Holidays Go to these locations: Florida, Spain, Majorca,
Canary Islands, Portugal, Cyprus and the Greek Islands.
www.enableholidays.com
Access Travel All properties are well known to us as they
have been personally inspected, or have been suggested by a wheelchair user.
We can therefore discuss the accommodation with you and give recommendations
over its suitability. We offer a personal contact to all our clients which
the larger tour operators are unable to give.
www.access-travel.co.uk
Can Be Done All the accommodation offered by Can Be Done
on this website have en-suite bathrooms with adaptations such as bath with
grab-rails or wheel-in showers. Jackie Scott, our first managing director,
and her wheelchair, travelled thousands of miles together visiting many destinations
and assessing their suitability. We’ve done the research so that you
can enjoy the holiday.
www.canbedone.co.uk
Disabled Accommodation Miami Apartments for rent in Miami
Beach, all Wheelchair Accessible, including roll in shower, balcony and kitchen
www.disabledapartments.com
Polio Newsgroups, Chatlines and Mailing Lists
Internet Discussion & Support Forums. Lincolnshire Polio Network Newsgroups,
Mailing Lists, Online Chat Room.
www.ott.zynet.co.uk/polio/lincolnshire/directory/forums.html
Ernie Wollering's resource page containing information on Polio Discussion
Forums, Mailing Lists and Chat Rooms
rlis.com/kelownadays/Eric/ernie2.htm
Useful Voluntary Organisation in Ireland
Age Action Ireland,
30 – 31 Lower Camden Street, Dublin 2
Tel: 01 475-6989
Email: info@ageaction.ie
Web site: www.ageaction.ie
Age & Opportunity
Marino Institute of Education, Dun Laoghaire, Co. Dublin
Tel: 01 805-7709
Email: info@olderinireland.ie
Web site: www.olderinireland.ie
Alzheimer Society of Ireland
Tel: 01 288-6614
Freefone: 1800 341 341
Carer’s Association
Metropole Centre, James Street, Kilkenny
Freefone 1800 240 724
Email: director@carersireland.com
Web site: www.carersireland.ie
Citizens Information Centres
(see Golden Pages for local addresses)
Local: 1890 777 121
Web site: www.oasis.gov.ie
Federation of Active Retirement Associations
Shamrock Chambers, ½ Eustace Street, Dublin 2
Tel: 01 679-2142
Irish Association of Older People
Room B15, University College Dublin, Earlsfort Terrace, Dublin 2
Tel: 01 475-0013
Irish Senior Citizens Parliament
90 Fairview Strand, Dublin 3
Tel: 01 856—1243
Email: seniors@iol.ie
Web site: www.seniors.ie
Irish Wheelchair Association
Aras Chuchulainn, Blackheath Drive, Clontarf, Dublin 3
Tel: 01 833-8241
Email: info@iwa.ie
Web site: www.iwa.ie
Mental Health Association of Ireland
Mensana House, 6 Adelaide Street, Dun Laoghaire, Co. Dublin
Tel: 01 284-1166
Email: info@mentalhealthireland.ie
Web site: www.mentalhealthireland.ie
National Association of Deaf People
35 Nth. Frederick Street, Dublin 1
Tel: 01 872-3800
Email: nad@iol.ie
National Council for the Blind of Ireland
Whitworth Road, Drumcondra, Dublin 9
Tel: 01 830-7033
Email: ncbi@iol.ie
Web site: www.ncbi.ie
Retirement Planning Council
27/29 Pembroke Street, Dublin 2
Tel: 01 661-3139
Senior Help Line
Third Age Centre, Summerhill, Co. Meath
Tel Helpline: 1850 440 444 (opening times below)
Monday: 10am – 1 pm:
Friday: 7pm – 10 pm
Mailing Lists
polio@maelstrom.stjohns.edu -
Caring support in a friendly environment.
polio-life@eskimo.com - 'Few holds
barred' discussion.
post-polio@egroups.com - "A
laid-back low-key, no-beefs list"
post-polio-med@listserv.icors.org -
Medical aspects of PPS.
polio-groups@makelist.com -
Support group information exchange.
pps-cg@makelist.com - For PPS
caregivers.
poliontario@eGroups.com -
A set of (intentionally) small lists.

