The POST POLIO SUPPORT GROUP is an organisation set up by Polio Survivors to assist their fellow survivors, particularly in relation to the Late Effects of Polio and Post Polio Syndrome. The Group was formed in 1993 and is run by a voluntary Board of Polio Survivors and friends, and is supported by voluntary committees, other voluntary workers and a small executive staff at the office in Dublin. The Group is run by a voluntary Board of Polio Survivors and friends supported by volunteers and a small executive staff at the office in Dublin.
- To create awareness and provide information on Post Polio Syndrome
- To support Polio Survivors
- To advocate on behalf of Polio Survivors
- The Post Polio Support Group is member led and Polio Survivors are central to its work
- Services and supports will continue to be provided, based on needs identified through consultation with members, fairly and within the financial capacity of the Group
- The Group will act according to best practice and in line with its Code of Conduct
- Sensitivity, empathy and understanding are central to communication with Polio Survivors
- Polio Survivors will be encouraged and enabled to live their lives with dignity
- The Group will advocate for Social Policy change to encompass the needs of Polio Survivors
- The Post Polio Support Group will cooperate and collaborate with other stakeholders, as appropriate
The Group was formally established in 1993 following earlier meetings of Polio Survivors. The objective from the outset was to assist people who were experiencing the Late Effects of Polio (Post Polio Syndrome). The lack of information available to Polio Survivors about their condition had been identified as a significant problem.
THE POST POLIO SUPPORT GROUP focuses on maintaining the independence and dignity of Polio Survivors supporting them at work, in the home and otherwise.
The Group presently has a membership of approximately 850 people, most of whom contracted polio in early life and are now experiencing problems with the Late Effects of Polio. It works to set up linkages between survivors so that no one feels isolated or alone. It provides many support programmes and fundraises to assist the Group to continue a high level of support to Polio Survivors, of whom there are more than 7000 in Ireland
Membership and Board Structure
Post Polio Support Group is a National Voluntary Organisation with members throughout Ireland. The Group has a Board of Directors & Trustees, a number of Committees, Social Support Group Conveners, and Phone Chat and Ring Leaders in each HSE region. The Board of the organisation can have up to 13 members. One third of these must present for re election annually. The Board meets at least 6 times each year.
The Post Polio Support Group is a Registered Charity No.CHY 11356, "Eligible Charity" Section 45, Finance Act 2001, and a Limited Company.
The main source of funding comes from grants made by the Health Service Executive (HSE). Grants are received from other bodies for specific expenses and services. Post Polio Support Group relies heavily on fundraising from the general public and corporate bodies to provide the integrated service required to comprehensively assist Polio Survivors.
Post Polio Support Group employs a small executive that manages the day-to-day working of the Group. The Chairman, Deputy Chairman, Secretary and Treasurer, who are all voluntary, liaise with and assist the executive. Other members handle specific projects e.g. the Newsletter and Fundraising, they also assist by attending at necessary meetings, conferences etc. and with the perusal and reporting on specialised documents.
Click to learn more about our immediate needs